Hi
I got diagnosed last week and it was a total surprise. I was diagnosed with ME CFS and fibromyalgia 12 yrs ago and have been coping well with the odd hiccough. I had an MRI last week for a suspected TIA and it turns out I have MS. I was very relieved it wasn’t worse news but it’s a total shock and I feel very odd about it. In terms of symptoms no difference right now I’m disabled but coping but I feel knocked sideways by it. Any advice is welcome, I have an appt with Neuro consultant next week and my GP later this week.
Thank you
Suzanna
hi suzanna
wow as if your original diagnosis wasn’t hard enough!
you sound level headed so i think you will avoid stressing out before your appointment.
better to read up on the ms drugs that you may be offered.
you don’t HAVE to take them but it’s better if you do.
it’s a tricky choice to make on the spur of the moment so make yourself familiar with the names of the DMDs disease modifying drugs).
they come in either tablet form (gilenya, tecfidera, aubagio),
injections (copaxone, betainterferons, avonex )
or infusions (lemtrada, tysabri).
i may have missed a couple of the more recent ones.
you should also be allocated an ms nurse
good luck
carole x
Hi Suzanna,
I was diagnosed with ppms last month and like you i was diagnosed with ME./fibro for the past few years.
For me it was a relief to finally find out what was wrong but that does not stop me thinking on a daily basis that i have a progressive condition. Iv got ms appointment next week.
Did they tell you the tye of ms you have?
I dont think my family and friends really understand but this site has been my support from limbo to diagnosis.
Find what works for you and be kind to yourself.
Christine
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