Secondary Progressive MS here and currently applying for PIP. Currently I live alone but I am in the process of moving back home to live with my parents.
I have done plenty of reading and research and have a good idea of how it works, but have some specific questions:
Is there a section where I can explain how my MS affects me in general? I.e. neurological fatigue, the cumulative effects of fatigue over the day, etc. The “About your disease” section just asks about drugs I am taking. Or should I just effectively repeat all this in each section on the various components?
Most of the tasks I can do in the sense “Yes I can do this if I had to do it once” but many of them I find them challenging. Because of this most of these tasks I avoid doing or minimise.
E.g. I can make myself food but I only every cook microwave meals or make a sandwich. I don’t take the rubbish out myself as the walk out of my flat and to the bins is a physically very demanding. Many of these things I avoid doing so that I can retain energy for other things.
Another example is bathing and washing. I can shower myself but it’s a herculean effort so in practice I currently have a shower about once a week (don’t judge me!). Does this count as not being able to shower?
What’s the best way to capture this? Do I literally score nil points if I can, say, microwave a ready meal and because I could take a shower if I had to take one right now?
- On mobility, I clearly cannot really walk very well. Yet I can walk more than 50 yards and less than 200 yards so that means I do not qualify?
Basically if I do the Beneftis & Work Questions I do not qualify for anything. Yet I am, by any reasonable estimation, quite significantly disabled. Essentially I can do the listed tasks but only if I dedicate my entire life and physical and mental resources to doing them.
Does that count? Or is it more a case of You can do these so your life might be difficult and largely miserable but well life sucks so deal with it.
Hope that makes sense. Thanks in advance.