I know everybody is different and its hard to say but how fast does ppms progress. Im seeing neuro tomorrow. Up until now have had pins and needles and charlie horses in calves and thighs as well as the odd body jerking but have been able to walk about 2 to 3 miles on a dsily basis today however after gardening for a while my legs felt really weak. Im still in process of diagnosis.
There is no answer to āhow fast does PPMS progressā. But why have you picked on PP as opposed to the other types of MS?
Mainly my age 68 this year and pins and needles charlie horses and a bit of weakness in both legs ive read that if you get disgnosed with ms in later life its usually ppms x
I think I mentioned to you about the āSnowflakeā label for MS, we each have our very own version of it and thereās no way of predicting itās path.
For example, I actually became a fitness instructor and Iād easily had symptoms for at least five years before starting on that path I stopped teaching my classes a couple of weeks before I was diagnosed as I was hoping to find out about my MRI (I believed I had a trapped nerve!). My diagnosis made me realise the danger of my chosen hobby and I never fully recovered so I didnāt/couldnāt go back to it. Iād had a couple of years of very random walking difficuties thatād just come and go. I remember quite specifically on an occasion, I taught two classes at the gym then whilst walking back to the car and I ended up leaning up againt the glass window of Pizza Express for several minutes (until my right leg started working again)ā¦ bizarre when I could still seadlift myself into the pose in my profile pic.
Five years on, Iām an EDSS 6.5 and Iām aged 47 for a couple more months. I donāt use a wheelchair full time just yet but do need crutches to stand up.
My only advice to you is to try to stay fit and active for as long as possible. But please donāt push yourself too hard and be careful if youāre effected by the heat (Uthoffās phenomena).
None of us can predict exactly what MS will do to us. This was the blog I wrote about it: Pole-dance - an unexpected life-saver - my MuSh
Sonia x
1 Like
Thanks Sonia its so sad you must miss your fitness training l know l miss my gym classes terribly l have been exercising since my 20s and going to gym classes and aqua classes for 10 years sometimes 4 times a week l feel broken now and cant fill that gap xx
Hi Kingsnorth,
I agree with what Sonia says as in the fact that we all have our very own version of MS and thereās no way of predicting itās path of when, how or how bad it will affect us.
I myself have PPMS but was only diagnosed with it in 2015 but by then Iād already suffered with so many symptoms dating back a number of years previously.
Iām 46 now, not sure whether thatās classed as young, old or just the norm but Iām just trying to take each day as it comes as I (and probably many others) just never know how each day will be.
This forum certainly helps as thereās usually somebody around to offer much needed support or, and adivce.
Take Care
Twinkle Toes x
1 Like
Hi Sonia,
Just had a read of your blog, yet again another amazing blog by yourself 
Oh what I would of given to be able to Pole-dance back in the day in the first place lol nevermind before this horrible disease struck :-/
I used to enjoy walking, dancing and exercise but alas that is no more and now I can only try to remember how it was and watch (with my trusty walking stick by my side) all these young uns (even oldies) in awe of them being able to do soā¦ MS sucks 
Twinkle Toes x
1 Like
I read your blog Sonia what a story you must have had amazing abs. I saw private ms neuro today and after doing usual tests said l dont show signs of ms but if l want l can have an mri. How he can tell l dont have ms by a few neuro tests l know not. I am due to see him in August on N H S and will ask for mri then as something is causing symptoms. I looked up his qualifications and he does specialise in ms so who knows.
1 Like
Thanks lovely, yes I miss the way I could walk, not just walk but āslinkā in heels!
Some of the best times I had was wih my oldest students, they had about ten years on me and weād cry with laughter!
Sonia x
1 Like
A lot of MS physio is about being strict with yourself and repeating the exercises. I now have a pot where my abs were but I can still feel them. I know Iād have been chairbound if I hadnāt found it when I did and thanks for the feedback
Sonia x
xx
1 Like