I’m 56 y.o and I’ve had permanent balance issues for around 15 years and have been told I have everything from Labrynthitis to Benign Proximal Positional Vertigo. I stumble around, have intense fatigue.
2 months ago, I had a fall and symptoms that were believed to be Cauda Equina.
Lumbar MRI said no to that but still have numbness in both legs.
G.P refused head and neck MRI so I got them done privately which went on the credit card. Results were “multiple round and ovoid hyerintensities of periventricular area, distribution and morphology make MS the likely cause”.
Sent that to the G.P and they did a full neck and spine MRI which showed “areas of demyelinisation of cervical and thoracic spine”.
‘Urgent’ neurologist referral is 3 months time on the NHS, so got the card out again and booked private which is next week!
I am feeling a bit worried to say the least, I’ve looked at my MRI’s and it doesn’t look good, feeling cross that my GP has never taken me seriously and I had to pay to get some answers.
I wonder now what the private neuro will say and if it is MS how I then go about getting back into the NHS for treatment, since I certainly can’t afford to do that!
Has anyone else done this ‘hybrid’ diagnosis?