Hi everyone,
Neuro wants to put me on this, and I was wondering if you could share your experiences of it? My main concerns are brain fog, lethargy, fuzzy head. But if it stops me wanting to rip my legs off, I’ll think about it. Just can’t be top fuzzy as I’m very busy at work.
Thanks in advance.
Hi, I take pregabalin . It took a while to get used to it but I find it has helped me. Weight gain has been a problem though.
I weight train on my good weeks so should avoid that, plus we don’t have any processed food in the house (too tempting) x
Any more experiences? I’ll be starting it this next week if neuro gets his way.
Hi MrsC
I had the fuzzy head, etc… big time with Pregabalin and unlike Tonka it never really settled with me sadly.
As far a pain help was concerned, yes it helped me but I couldn’t manage the foggy, drunk fuzz and still get on with my life so had to quit.
Like all meds, there will be both good and bad experiences here on the forum, so do give it a try, it might just be your answer to your legs.
Jools
X
I know, just wanted to hear real life experiences so I can weigh up the benefits. x
Hi,
I take Pregabalin and find it works very well for me. I nearly gave up with it several times in the beginning though, as it made me feel quite nauseous and a bit spaced out for a couple of hours after taking it. I posted on here and someone recommended I take it with food and that really helped. It probably took me a month to get used to it. I think my gp started me off on quite a high dose though, so that might be why. Had I realised, I would have asked him to change the dosage. I’m quite sensitive to meds too and most things that I should get used to in a few days, take me a fortnight!
I would say to give it a go and even if you feel you feel it’s not working to begin with, to stick with it and give it a good try. I’m glad I did, as it has really helped with the pain.
Fizzy x
Hi,
I take Pregabalin and find it works very well for me. I nearly gave up with it several times in the beginning though, as it made me feel quite nauseous and a bit spaced out for a couple of hours after taking it. I posted on here and someone recommended I take it with food and that really helped. It probably took me a month to get used to it. I think my gp started me off on quite a high dose though, so that might be why. Had I realised, I would have asked him to change the dosage. I’m quite sensitive to meds too and most things that I should get used to in a few days, take me a fortnight!
I would say to give it a go and even if you feel you feel it’s not working to begin with, to stick with it and give it a good try. I’m glad I did, as it has really helped with the pain.
Fizzy x
Hi,
I take Pregabalin and find it works very well for me. I nearly gave up with it several times in the beginning though, as it made me feel quite nauseous and a bit spaced out for a couple of hours after taking it. I posted on here and someone recommended I take it with food and that really helped. It probably took me a month to get used to it. I think my gp started me off on quite a high dose though, so that might be why. Had I realised, I would have asked him to change the dosage. I’m quite sensitive to meds too and most things that I should get used to in a few days, take me a fortnight!
I would say to give it a go and even if you feel you feel it’s not working to begin with, to stick with it and give it a good try. I’m glad I did, as it has really helped with the pain.
Fizzy x
Thank you
I find the food thing helps with tizanadine too, no drowsiness if I eat when I take it. x
hi
i tried pregabalin a few years ago, felt drunk a lot of the time, gained over a stone, but it helped with pain and tingling and also better sleep but i didnt want to gain any more weight so tried to come off it, that was really hard i had to try 3 times as i felt terrible cutting it back and had to keep taking the med even though i cut back slowly took over a year to get off it.
eventually i tried gabapentin instead which i find much better for me and have lost the weight.
everyone is different so you may find it ok good luck
noms
Hi MrsChicca,
I have tried both pregabalin and gabpentin for neuropathic pain in my leg, arm and face. unfortunately both gave me an adverse reaction (hot, raised rash on my neck and chest) that created more pain on top of the original so was really counter productive!. This meant I never felt the benefit of them!!
the neurologist has now started me on tegretol. two tablets in and so far… so good… well, no rash at least!! Early days tho.
I hope all goes well for you x x
Asher
Hi, I started taking pregablin on 1st Oct…at 3 x 25mg a day. I had no sickness or fuzziness. I wonder if those who had awful side effects almost immediately, were put on too high a dose to start.
After a couple of days, the stabbing pain in my tum, following an spc operation, vanished! I took the drug to help with chronic heel pain when in bed and tightness when sitting. The drug reduced that pain a bit.
My GP upped the dose from 75mg a day to 100mg…she wanted me to double the dose and I said id preferred to increase it by just 25mg and she agreed.
The tum pain has returned with a vengeance, but that was because I went on a huge trundle/visit and was in my wheelie for 12 hours!!! Far too long for me.
Anyway, back to the pregabalin, I will increase it to 150mg in a week. Doc said that is a low dose by other applications.
I`m sorry to hear it has not helped some folk and caused worse pain for others.
I continue in the hope that my pain will be gone!!! Fingers crossed…maybe I am a naive optimist, but…
luv Pollx
Hi, I was already taking 75mg of amitriptyline in the evening but I was still having quite alot of nerve pain. So, I was prescribed progabalin to take as well. My doc started me on 25mg in the evening for a week, then 25mg morning and evening for a week, then 25mg morning and 50mg evening for the third week - and so on. I now take 75 mg of progabalin morning and evening - in addition to the 75mg of amitriptyline. The combination works well for me. There was a few side effects when I started it, but those quickly settled down… so hope it will be OK for you. I do take all my meds after food.
Hazel
x
hi Hazel, I found your reply interesting, as I take amitriptyline too. I wondered if that and pregabalin would work well on pain levels. I am fine on the former and have been on it for 13 years. I take 75mg at night.
i am new to pregabalin and am hoping it will take my heel pain away.
Thanks for your info.
pollx
Hi, I have been taking 300mg Pregabalin twice daily for over 2 years. It has helped to keep the neuropathic burning pain at bay - not completely, but it is much more bearable. I haven’t really suffered from any side affects. No headaches , no particular tiredness ( although I aways feel sleepy in the afternoon - probably an age thing) and … No eight gain either. So it suits me BUT remember where side affects are concerned . . . .everyone is different and you won’t know about that till you try them. I was on carbamazepine before which really did kill the pain but it affected myth white blood cell count so I was taken off that. I hope this helps a bit. Good luck. R