Hi everyone, I’m new to this forum and I’m in need of advice. (Apologies if language is bad, I’m finding it difficult to form words-thank God for autocorrect!)
I’m a 19 year old female, working and attending university. I have been experiencing symptoms since October 2017.
My symptoms are:
- Severe arm/leg weakness
- Misty vision
- Urination incontinence
- Language problems
- Pins and needles (sometimes feels like cold burning sensation)
- Severe fatigue
- Balance/spatial awareness problems
- Nerve pain all over body
I have been back and forth to GPs, which all suggested my symptoms were migraines; shutting me up with tablets (which didn’t work). In November 2017, I went to A&E due to weakness and severe muscle jerks/pain. Again, they did no tests and said it was migraines. When my symptoms seemed to have decreased in severity, my GP sent me to a neuro. He thought was migraines but wanted to rule out anything with a brain MRI in December. My symptoms flared up again 3 weeks ago and I rang the secretary and she told me today that my neuro doesn’t need to see me again.
I called in sick at work today because my symptoms are so severe (I haven’t had a day off sick in 2 years). I called for an emergency doctors appointment, to which they said it was all in my head and anxiety! She even said my tremors were “intention jerks”. I couldn’t believe it. She made presumptions with my pre existing mental health condition (I’m doing really well with it) and kept asking if I abused alcohol or drugs. She took one look at me and thought I was a teenager with mental health problems and substance abuse issues. I asked if there was anything I could do but she said nothing because there isn’t anything physical causing my symptoms, its all anxiety. Sending me for blood tests in 3 weeks, probably just to shut me up. The most mortifying and humiliating thing that I’ve ever experienced.
I feel so hopeless and I don’t know what to do. I cannot function properly. I can barely walk due to the severe weakness in my legs, and my tremors/jerks are driving me crazy. The nerve pain is never ending and I can’t seem to get rid of the pins and needles. I have been battling for 5 months, but no-one wants anything to do with me. I know it’s not in my head, this is real and I’m experiencing it. I feel like I’ve hit a dead end.
Can anyone suggest anything? I feel like I’m running out of options.
(Sorry for the long winded post)