Up until last year, I was coping reasonably well and getting about mostly unaided. Then I started needing to use a stick for the first time in a few years for any walking over a few hundred yards. I then started needing to use a mobility scooter for shopping centres.
Over the last few months, it’s been getting steadily worse which has led to me needing to use crutches. The last few weeks it appears to have accelerated to the extend that I now struggle to get around the house without having to cling on to furniture/walls.
To cap it all off, I just made the cardinal sin of looking it all up on the internet and have come across a few articles saying that, on average, wheelchair dependency for PPMS sufferers comes after 10 years. My 1st symptoms appeared in 2002!
I’m petrified that this awaits me very shortly and all sorts of things are running through my mind, the biggest of which is that our home would be impossible to convert to something that would be remotely wheelchair accessible and, even if it wasn’t impossible, we couldn’t afford it. Most of all, I really don’t want to spend the rest of my life sitting down!
Sorry for the whinge, I’m just very upset at the moment and need to vent.