Hi all
Are there people on here who have been diagnosed in the last 10 years who are still fully mobile and doing well ?
After talking to my ms nurse she was telling me that a lot of people diagnosed in the last few years are still doing well due to the modern treatments available, I’m not sure if she’s just putting a silver lining on my situation , I know from what I’ve read since joining here that ms is different for everyone but it would be great to hear some good stories of people who have been diagnosed in last 10 years or so and still doing well , I’m trying to be positive but keep reading stories of peoples struggles which is putting me in a bad frame of mind
Some positive stories might also help others who were recently diagnosed
Thanks 
as I’ve finished writing this there’s a contestant on the wheel with ms
I think she’s probably right. I have heard that heard a neurologist say that even people even with very active RRMS who have been in and out of his consultation room like a fiddler’s elbow suddenly disappear once they’re on a highly effective DMD because they just don’t need to see him any more. For the past 15 years I have been (more or less) one of those people. Unfortunately I had sustained a fair bit of permanent damage in the years before starting on a highly effective DMD, but that’s another other story.
That’s great to hear 
The guy on the wheel said he was diagnosed in his thirties looked like he was in 40s now , sadly he said was unable to stand up , I’m finding myself worrying about this happening I’m 47 know worrying about something that’s out of your control is pointless but it’s constantly on my mind , probably as I’ve only recently been told I have ms
I hope you continue without any issues
Hi Shay. I was diagnosed over 10 years ago - about 18 - but I’m very happy to tell you that for the first 8 years or so I was fully mobile and basically, other than doing my weekly injection of Avonex I more or less forgot I had MS.
I carried on working without a problem and only stopped when quite fortuitously my employer offered a pretty generous voluntary severance package.
Then One day when walking around town for something like an hour , an hour and a half I suddenly found my right leg wouldn’t work properly. Since then there has been a slow decline in my mobility and now aged 70 I can still walk continuously for 10 or so minutes but when outside I use a stick - partly for reassurance. If I’m not walking continuously then I can and do potter around doing gardening for maybe an hour or even two ( and still do my share of the housework!).-
Avonex is one of the first treatments available and yes, there are more effective ones available now.
Hope that reassures you a little?
I’m always in two minds about talking about / sharing my experience of MS as I know that many have fared a lot worse than me. However, basically I’m doing not too bad. Apart from walking my main problem is that If I feel the need to ‘pee’ then I have to get to the bathroom quick ( so far I haven’t had ‘an accident’ but it’s always a worry). I still enjoy life !
Thank you. Alas, I have plenty of MS issues! It’s just that most of them predate starting a highly effective DMD. 
Hi Alison
Am I right in thinking your taking tysabri ?
I’m with Nuro in 3 weeks and think I might be offered this as I have chrohns and believe tysabri can help with both , my crohns hasn’t bothered me for years so think he might be wary of ocrevus as I’ve read it can cause problems for people with stomach issues
Yes - I’m on Tysabri. If I had started it sooner I wouldn’t be as disabled as I am now, I feel sure. All water under the bridge now, of course. But it is this personal experience that makes me urge others with aggressive RRMS to do whatever they can as soon as they can to protect themselves.
Agreed I want to hit this thing with both barrels , sorry for all my replies and questions, I want to get as much info as I can for when I see nuro, thanks to you Hank also I appreciate your time have a good Sunday all 
Just to add that some 8 years after my diagnosis I got married and 10 years after diagnosis I was walking in the snow and ice on Svalbard (having gone there on a ‘cruise’ in a smallish ship of 90 or so passengers). There is life after diagnosis!
I have only been diagnosed this year after a ‘significant fall’ as my consultant described it.
Since then my mobility has reduced dramatically and I have a number of other symptoms. What I would say though, is that I was diagnosed with secondary progressive MS. I have since found out that I have been living with MS for over 20 years. So yes, I was doing relatively well without medication. Imagine how well I could have done with medication.
Kind regards, Alison
Hi
I’m sorry to hear that I hope things improve for you, how do they know you had it for 20years ? Is it based on mri results?
Thanks Shay
It’s probably even longer than that. The MRI showed an awful lot. There were numerous old scars. Talking with my consultant we believe the first episode was when I suffered a diplopia whilst driving to work. All the cars were moving all over the road, or that’s what I saw. It was put down to stress from dealing with my husband’s back injury.
I now know I’ve had other relapses since then, but blamed them on other things.
I just take it one day at a time now.
Hi,
I was diagnosed nearly 2 years ago, after a couple of years of faff getting to diagnosis. For about 1.5 years I’ve been on a high efficacy DMT.
So far, I’ve been incredibly lucky. I can run, dance, do hiking holidays. I work a job which involves constant international travel and (right now) zero work/life balance! So if I’m tired, I can put it down to a ludicrous work schedule. My main problem with MS so far has been worries about the future.
Many people are less fortunate than I am: MS is very individual. And I have no idea when my luck will run out.
However, I think your MS nurse is right: at least in the early years, some people are lucky enough to be able to take their high-efficacy DMT and get on with their lives. We really need something to help with the progressive side of MS and all my hopes are pinned on research for that.
Hi
Leonora
That’s great news
If you don’t mind Can I ask what dmt your on please
Thanks