I am currently in the middle of the diagnosis process and I am experiencing what what I think may be the worst ?MS hug pain. This pain is upper right quadrant under my ribs. Gallbladder I hear you cry, well that was removed in September because I threw a stone off into my liver causing all sorts of problems! Also I thought I had been getting recurring biliary colic for nearly a year. So it was a relief when they said they were going to take it out or so I thought! Upped my Gabapentin yesterday and took co-codamol and ibuprofen it literally reduced me to tears at one stage! The interesting thing is before MS was even queried in January last year I had a flare up of ? Biliary colic then just after developed saddle numbness and numbness in my feet! Had an urgent MRI and was told by ortho doc that I had an L4\L5 prolapsed disc, to rest and she handed me a sick note for 6 weeks. When I saw the neuro at my 1st appointment I mentioned it, she looked at the MRI and said the report clearly states there is no prolapse, go figure, could this have been a previous episode???
I do get other hug symptoms too but this is the worst! Sorry the rant just wanted to vent really, I was supposed to be admitted last week for LP and steroid challenge but that got cancelled due to lack of beds. Its been rescheduled for next week and really hope I will get some answers and treatment.
Hi Jarv’s mum, Oh poor you I can hear your pain coming through the text! Yes you’d normally say gall bladder eh but now it’s gone? I had a nurse friend who had hers out, still had symptoms loose stools etc… But not pain like yours. I once was diagnosed with pleurisy in I think 2007 due to rib pain pain sides, excruciating kept me awake in night, although no crackles or sounds heard in lungs, didn’t even have a cough! I also wonder whether this was related to this nerve stuff? I hope you feel some relief soon, hopefully the drugs will reacha level and kick in? Lots luv Ally
Hi Ally,
Thank god its not so bad today! Really couldn’t have done another day like that. Woke up with some pain but went after taking my Gabapentin and have not needed any else. Had to walk the dog to the groomers and by the time I got out felt like I had a lead weight in the centre of my chest. Unbelievably when I saw my neuro last and said I was amazed how long things are taking, she said if it gets unbearable to present myself to A&E and they would try get me moved to the neuro unit. Amazing I work in that A&E and the last thing I want to do is be there in pain and out of control in front of my colleagues!!! But you what I got bloody close yesterday (excuse my French!).
How are you doing Ally I see you are still off work too?
Di x
Hi Di, Glad it’s passed on, all these on off symptoms are bizarre eh, whatever diagnosis all nerve/ neuro related surely? Wish I could say ok, I went to physio yesterday ( post thread ‘after physio’) Which was positive, he was o nice and really took all my list of symptoms seriously, was a bit concerned and is speaking to the senior who referred me to him from spine clinic. Seeing him next week again. Last night pain intensified in neck/ head, also took gabapentin which dulled it. Was awake at 4am though with electric shocks and twitching of muscles in left arm and leg,foot. Am very stiff and numb today, (my face is so numb it must feel like this having Botox except I’ve still the wrinkles lol! ) left eye more blurred and stinging pain on/off, struggled to focus at all this morning. Had some bloods today for vit D, calcium, folate etc… Yes am off work, only got 2 week initially, will see how it goes, they are been very understanding actually but we will be very short staffed end of March so am consensus of that fact. Am doing bits of housework as feel guilty been at home if you know what I mean; everything’s an effort though, am left handed and my left arm is like a lump of wood right now! I can understand you not wanting to roll up at A&E especially where you work! And I bet they would love you for it!!! Seems an age when waiting for appointments etc doesn’t it, I like to know the science bits then can rationalise it in my mind, hence awaiting MRI result. Hey oh, onwards and upwards, cest la vie… ( excuse my French lol) Take care Ally x
Hi Ally,
I have been off since 27th December, I tried after I was advised by neuro that I probably shouldn’t be working. However after several shifts of trying and failing, getting sent home and leaving them short mid shift, decided it was better to be signed off till my admission. However we did not realise it would take sooooooo long!!! Glad your physio is taking this seriously. I used to get the electric shock down my left arm when bent my neck but that has passed now. I also get facial neuralgia, usually left but right sided last weekend. Neuro also basically said that I expected instant tests and results because that is how we work in A&E! When she said that and about presenting to the department one of the sisters was beside me because my husband couldn’t make it, she is flabbergasted and cannot believed the attitude and lack of any sort of forward planning!!!
She did call me back for my MRI results and her manner changed drastically my husband spotted it, I have several brain lesions and one large on in my c-spine. Good luck with your results too I really hope you get some answers. Went up to 600mg 3 x a day yesterday and actually think it may finally be having an effect! Do not stress over work it will not help!!! If they are short, they are short. If you go back under those circumstances and have to work harder and stress more, you will feel worse!
Take care.
Di x
Morning Di, Thanks, your right about work; it put in perspective when I went for physio, I thought if he was in the pain etc I was and trying to focus on others pain problems it would show and couldn’t do the best care, that’s how I was- laying on treatment coach between patients due to neck pain and fatigue, no focus etc…I also had to keep coming home, GP said take 2 week off. Also yesterday I did too much cleaning! I just pushed on through ignoring the twinges etc.thought it would make me feel better. And then I went very numb down left side and soooo stiff, off balance, and the twitching toes I hate that. Eye was bad, felt like pins sticking in and eye been pulled back in socket, seems settled this morn though. My left side feels like stone though! I did the gabapentin in January but had too much too soon, physio said just get used to it then titrate up, it does help I agree. In 2001 I had the worst pain ever experienced in left side of face for 2-3 days, it was a bank holiday so got in to see GP after, it was settling by then, he was baffled and said it was salivary gland stone?? I think maybe that was facial neuralgia? I hope you get answers soon too, I get mine Tuesday, I hope it’s a mechanical problem - disc etc… My fear is nothing then the limbo of wait and possibly no explanation, I read the FND site, some poor people on there with years of problems and not a great deal of support/professional help. Anyway can’t predict anything… I hope your admission goes ok, let me know, I’m going to be silent until results next week, take mind away and keep positive. Thanks for your chats, really helps Take care Ally x
Ok Ally understandable. Will let you know and will keep an eye out for yours. X
Hi Di, Just to let you know physio rang me this morn, MRI unremarkable, nothing causing pinched nerve or disc damage etc… They are gonna see me and he said they can do neuro referral, My husband can’t understand it, he thinks I’ve had a “nervous breakdown” from stress, I haven’t but then in a way it have? Take care Ally x
Oh bless you sweetie, its so much easier when something shows up isn’t it! Taken me a while to reply as I have spent the last 2 days on the children’s ward with my 14yr old. Can absolutely confirm as a result that stress and tiredness exacerbate my symptoms!!! Diagnosis turned out to be nonspecific abdo pain so we are now home and I will take care of her pain relief!
I really hope your neuro has some answers you must be so fed up. Was absolutely petrified she would have to have surgery and would come out as I was going in! Just a thought have they done a brain MRI yet? Or was it just spinal? Hopefully your neuro will sort or for you, keep me posted. Right now I am off to rock gently in a corner not sure how much more I can take!!!
Di xx
Oh Di, am sending you massive ((hug))) Am glad your daughter is ok, it’s so scary through with the kids, and yes I agree the stress factor is definitely not good for symptoms. On,y had spinal MRI and not sure which type and if it shows anything else re: lesions or not? My head really affected, eyes, pain, pressure, balance, so think need me brain looking into. I hope your ok, stay positive, keep in touch, have a glass of red ( if you drink?) and try relax a bit, easy to say I know. Take care of you Ally xx
Thanks Ally glass of red down, but not too many also not good for the symptoms 
xxx
Too true Di, Moderation is ok though eg 
Xxx