I’m guessing “acceptable” depends on the patient.
To me personally, yes, it is acceptable, because I don’t really want to be excessively medicalised and monitored all the time, for something that can’t be cured anyway.
I don’t want repeat MRIs,as a matter of routine, just to “see how it’s doing”, because I know myself how I’m doing, and MRI evidence actually tends not to have a very strong correlation with disability. Where the lesions are is more crucial than just the numbers game. I don’t really want or need to keep a running count, because the practical measure of how I am is more important, and I can tell that myself, without needing to attend for regular scans and checkups.
The less truck I have with the hospital, the more satisfied I am! I’m actually rather peeved about having to go later this month. I’ve been having trouble with one of my medications, and rather than try altering the dose, or switching me to something else, they’ve referred me for a somewhat unwanted physio appointment, which I’m less than ecstatic about.
You can get any of your medical records, on request, although there may be a small charge. I can’t remember what the exact current limit is, but it has to be proportionate to the actual cost of making copies for you - i.e. it can’t be run as a profit-making enterprise.
If you - that is, your partner - need an MRI for reasons unconnected with your NHS care or treatment (i.e. treatment you’re contemplating privately), then your best bet may be to pay for the scan privately. This could cost in the region of £300-400 for brain only, to something like £1000 if it’s full brain and spine with contrast. If you’re considering vastly expensive treatment abroad, then I assume a few hundred pounds up-front, for a scan, would not be a deal-breaker?