Hi All.
I was all set to start my first Ocrevus infusion but had my third relapse so was offered Tysabri instead. Does anyone have any thoughts or opinions on one over the other? My MS doctor and nurse are both saying Tysabri is the superior drug, but the risk of PML really scares me. I’m waiting for my blood test result but if I’m JC-, what would people suggest?
Tysabri has been keeping the lid firmly on my highly active RRMS for more than a decade. For me, it was like limping, barely afloat, into the blessed calm of safe harbour after battering storms on the high seas.
A stable decade and more. I still can hardly believe it.
My son has been on Tysabri since 2013, is was 14 when he started. Best thing for him. Now on Tyruko, not sure yet if good. He has just become JC positive, however he will have one go on Tysabri again so he can take the JC virus test given by Tysabri, not Tyruko!
I’ve been on Tysabri for 19 months now and have had very little reaction to it. My consultant and nurse recommended it because of how frequent my relapses were and the lag time Ocrevus can have in working. The PML risk for the first two years is tiny even if you are JC+ (like I am). It’s taken a year but I have finally had my first stable scan in Jan 25 thanks to Tysabri.
Recently diagnosed with RRMS, my neurolgist said l choice ocrevus and tysabri, he said Tysabri is better so l chose that, only downside is monthly rather then 6 months and the PML risk, but l JCV negative and my neurolgist said its pity much impossible to get PML as long as l remain JCV negative, if l become positive then l might switch to ocrevus