Louise - a pertinent question - have you become obsessed with your m.s.?
Are you kidding Krakowian? Louise has only recently been diagnosed. As if everyone isn’t a bit obsessed by their MS when just diagnosed? Or rather, as if everyone doesn’t see their lives through a veil of MS when newly diagnosed?
It takes time just to get used to having MS. To get used to taking a DMD. To think about how it affects your life, your relationship, your work. It isn’t a matter of just one day being diagnosed, then a couple of months later feeling that ‘oh it’s just one of those things we have to live with’!
Sue
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Big hugs
Umm, do we have to accept that it will get worse ? Yes it’s a possibility but is it a definite? Q not criticism
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Strange question, I think we all initially become a little ‘obsesed’ with ms when we are first Dignoseed, finding a way to get back to being ‘our selves’ is hard. Assuming that you are currently felling obsesed by ms. This is a great place to work through stuff, but start a new thread and ‘own’ your own feelings is the best way to get support. Lots of hugs & trust me, if you put your true feelings in a new thread you will get lots of support.
Us partners don’t have a clue what to say in these circumstances, i think i drive my wife crazy too with the same question but if your answer is always " I’m Fine"(as my wifes is) i bet that drives them equally mad if they can clearly see you are not Fine!
Ollie
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Yes that’s very true. I do drive him mad. It’s my special talent haha
Thank you
maybe krak’s question says more about her/him than louise? just a thought!
louise-ask/vent/share away! as i understand it-this is why this site exists! and just like ‘real life’ we all have different opinions-then u pick and choose which one you like!
ellie (ready to be chosen or ignored-both ok!) take care louise.
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When I first saw Krakowians question to Louise, I was surprised and a bit p’ed off with it.
Then I read Krakowians own post about being out among ‘healthy’ people and it making him/her even more enraged by MS than usual. And was even more incredulous at the question.
But having thought about it, I suspect Krakowians original question was badly worded, but ultimately not the put down it seemed.
Maybe all of us are very sensitive about having MS. Maybe we are all to a greater or lesser extent obsessed by it. Maybe we have to be in order to be able to keep track of our health and well-being.
Ellie has the right idea, keep asking, questioning, ‘venting’ frustration, just talking really.
And feel absolutely free to be obsessed by the fact that we all share this crappy disease.
Sue
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