Hope you don’t mind me having a moan but I feel as if I’m not getting anywhere with diagnosis.
I’ve been back to see my neuro who told me initially I had benign MS which he diagnosed on clinical exam and history only. When I went back to see him after my brain MRI he was about to discharge me as the scan was ok. When I told him that he had given me a diagnosis of benign MS on my previous visit he said well it can’t be as the MRI is clear.
I had been to see my own GP that week who did a neuro exam and found a positive plantar reflex in my foot and gave me a letter confirming this to take with me. My neuro did an examination on me and my partner then asked him about a cervical spine MRI which he has referred me for and I’m waiting an appointment but only after asking for it to be done. My neuro said that an LP would only give an extra 1% chance of diagnosing MS so it was mutually agreed that we would go for the spinal MRI.
I fell at the weekend and ended up in casualty as I lost a lot of sensation in my leg and couldn’t weight bear. All the clinical abnormalities noted by three other doctors apart from my own consultant were also seen by the casualty doctor. This doctor had a chat with the neuro on call who said from looking at the notes of my own neuro that he highly suspected MS despite the normal MRI.
Anyway (moan soon over) my GP received a letter from my neuro-consultant not stating this and accusing me of keeping my arm stiff when doing a reflex test. None of the other doctors who examined me before have ever found this and have noted abnormalities on examination. He seems to say one thing in a consultation and writes something completely different to my GP. The neuro on call seemed to think my consultant highly suspected MS from his notes but when he has written to my GP he contradicts this and almost dismisses it. My partner who is also a doctor was in on the consultation so I know exactly what my consultant has told me. It’s so difficult as my GP is not happy to refer me to another neurologist even though my consultant is only in the hospital on an ad hoc basis for catch -up clinics and not a full time neuro.
Sorry for the rant but I’m thankful to have you all to listen to me. xx