Hi I had optic neuritis in 2021. I had a few mris and they found some lesions but they put that down to damage from the ON. Since then I feel I have had more symptoms of ms. Most days are fine but some days are harder.
I haven’t spoken to drs or my neurologist since 2021 about it all.
Wondering wether to go to the docs or just carry on and hope nothing gets worse.
Just thinking out loud and wondering what someone else would do.
Thankyou everyone
Hi Sauce56
Start keeping a diary of your symptoms, what, when, how it affected you; it’s really helpful to get a better overall view, you can then take this with you to see your GP with a view to being referred to a neurologist and having tests to rule out other causes whilst you wait to see the neuros.
Just to say that I agree with what @TheresaB says. Make a note of changes and talk to your GP or MS Nurse. If nothing else, they might arrange for another MRI to see what if anything significant is happening.
Hi, 2 bouts of ON within 5 months was enough to get me referred for tests for MS. A variety of tests and a LP later saw me diagnosed with RRMS. That was 5 years ago. Personally, I’d want more concrete proof one way or another if i was you. LP, VEP etc. Good luck.
What’s lp or the other one you said please?
Thankyou everyone. Definitely going to make a diary
Apologies, LP is Lumber Puncture and VEP is Visual Evoked Potential. Both are part of a set of tests used to diagnose MS.
Ah yes I should have guessed lumbar puncture. There was talk of that but I never heard anything from anyone after my last neuro visit.
Think a gp call might be in order
Hi guys I have been making my list of symptoms etc.
I keep getting this and it drives me up the wall. Just wondering if it’s related or just something else entirely.
My arms go bright red, like blood is boiling under my skin and I want to itch the life out of it. My elbows remain white it looks bizarre. (I have added a pic of my white elbow 
)
Again, could be something or nothing but wanted to check in incase anyone had something similar.
Thanks again guys x
Not sure about the arm but doubt it’s anything MS-wise. By all means show the pic at your next appointment though.
I’ve heard of people with clinically isolated syndrome being started on copaxone. I’m not sure if your ON is classed as that but if it is then I would push for that treatment if it were me.
Good luck x
Could it be Hives?
I thought this. I keep getting it and it feels like my blood is boiling underneath it’s horrid!
A chemist should be able to tell you if it is Hives and suggest an antihistamine to treat it.
Hopefully, that will clear up the nasty symptom.