Hi all, or anyone that cares to read this. I’m newly diagnosed preliminarily with RRMS (march2017) I had my first symptoms in June 2016 but as I’m sure many of you have discovered yourself, if I really look back, I can see that I had symptoms a long time before diagnosis. It’s taken me a long time to work up the courage to come on this site, ive known since ladt year that ms was a strong possibilty, and it’s been a hellish emotional rollercoaster since then. My first symptoms last year were a progressively numb right leg and drop foot and weakness in my left. It ended up with me being hospitalised because I couldn’t walk, but at the time they thought it was just another slipped disc. Then came multiple MRIs and an initial diagnosis of Clinically Isolated Syndrome or possibly Transverse Myelitis, but they warned me due to spots on the brain, there was an 80% chance of the diagnosis changing to ms. A couple of relapses and MRIs later and that’s exactly what happened. This all sounds incredibly self pitying, and I apologise for that, I don’t mean it to be, I’m only at the beginning of this journey and I don’t talk to anyone about it. I don’t even talk to my husband-partly because if I do, I’m admitting it’s real and partly because unless you’re going through it yourself, you can never understand the emotions you go through. I guess I’m just looking for advice or positive stories. I know how this disease can end up, but I’d love to hear from anyone who has had it for many years and is still mobile. I just recently started on Copaxone-THATS been an eye opener, put it this way, I don’t ever want to be stung by a bee or a wasp! But if it helps, I’ll happily inject myself every day for the rest of my life.
Lots of love to anyone that’s been living through this, or like me is new to it