Forum

Newly diagnosed

Hi everyone!

This is my first post. I have silently watched other posts but felt ready to talk today. I was diagnsed with MS a week ago and I think I am finally starting to accept it. I expected this diagnosis but it is still quite a shock.

I am experincing some very tricky mobility issues. I walk with a stick at the moment. At the age of 28 with a very physical and sporty past, this is hard to digest. But in all honesty, it really helps.

I hope to post more in the future but really just wanted to say hi there and hello!

K

Hi K, welcome! I made up a word to say ‘sorry to hear about your diagnosis but well done for getting one’…so…Commisulations! I’m in limboland, with my first appointment with a neuro next week. Was it a long journey for you to reach your diagnosis? Have a {hug}. We look forward to hearing from you. :heart:

Hello there. A diagnosis of Multiple Sclerosis is never happy news but you have come to the right place. You can discuss anything on the Everyday Living forum and use this wonderful Newly Diagnosed forum [or any other] to ask questions or to scroll around to see how others are managing.

There is no such thing as a silly question so use the expertise of other forum users to help on this steep learning curve. Try not to frighten yourself - MS is a very individual condition and we often read of quite severe symptoms that you may never experience.

There is so much information on the website that it can get a bit overwhelming. You can always ask the forum Moderators - mostly Val, efb [that’s me], Stewart, bjs to point you in the direction of information you want.

One of our long standing members says ‘MS is a road hump, not a stop sign’ and that is so true. Try not to let it get in the way of what you want to do. Sometimes you may have to take a diversion but you can still get there.

Liz [Moderator]

Welcome to the site where you will get lots of advice, support and a place to vent. Be kind to yourself A x

Welcome K, this is a wonderful forum and you will get lots of thoughtful help, look at Everyday Living too.

Catherine x

Hi K

welcome to the site. I’m sorry for your diagnosis but am pleased that you at least have an answer for whats wrong and can try and move forward to getting the help you need. I’m undiagnosed but my neuro symptoms started 2 years ago (I would be the same age as you are now then) so I can commiserate - it’s not a diagnosis you’d welcome at any age but I understand at this point it must feel like you’ve just started living your life, become independant, got a job etc and then this thrown at you.

At the moment your emotions are going to be all over the place but in time you will have lots of questions. This place will be great for that. Lastly just remember having MS doesn’t mean you stop enjoying or living your life at all (I know people on here who have achieved a great deal - won international competions / opened buisnesses etc) it just means that there are times where you may need to think about the direction you want to take.

Good luck & look fwd to seeing you around.

Reemz

X

Hi everyone,

Reikiblossom, from what I have been reading, my journey seems fairly short but it feels like a long time to me. I did ignore my symptons for a long time but I did finally go see the doctor about 7/8 months ago. I waited for 7 months on the NHS and my mobility was just getting worse and I was nowhere near seeing a specialist. I have been incredibly fortunate as my partner’s Dad provided funding so that I could see a specialist privately. The whole process took just 3 weeks! I hope your neuro appointment went OK, let me know. PS I love the newly invented “comissulations” and thank you for the hug!!

EFB, you sound like an expert and I am already thankful for your support. Your quote is so true. Right now I have good days and bad days. I am suffering from anxiety at the moment, which doesn’t help, but I have told everyone around me that the diagnosis should be treated positively and this will help me move forward.

Arwen & Catherine, the forum really is wonderful isn’t it? What an incredible community where we can all support one another. I cannot explain how much help I have found already.

Gokr, from the forum I can see that I am lucky to have reached diagnosis stage. There are so many people that are still waiting. You are spot on my emotion are all over the place but I think I am starting to accept it. My partner has had me out and about (I would prefer to hide) making sure that I get to experience everything, she helps me so much and nothing is a boundary where she is concerned. I will come round to that way of thinking soon I am sure.

Thanks for your comments everyone,

K