Newly Diagnosed

New diagnosis and before diagnosis
1

Hi

I posted before Christmas about my symptoms. After MRI and lumbar puncture I was diagnosed with MS last Friday. I am still in a bit of shock even though I half expected it since I thought my initial diagnosis of a stroke was wrong. However what has been on my mind all weekend is that when I asked was their any medication I could take the neurologist said NO. He said come back in 6 months and would send me details of an MS nurse I could call if I got anymore symptoms to by pass my GP. When I asked what sort of symptoms to expect he didn’t really answer. I have read on this website that their is medication for RRMS but not PPMS, he didn’t tell me anything abut what type. I now feel I should have asked a lot more questions. I was thinking of going to my GP and asking about medication and for a possible second opinion. Can anyone advice me on what I should ask my GP in terms of medication?

Thanks

Nicola

2

Nicola If you use the near me search on here you can find your nearest ms nurse contact and call them, that’s what I did. In my own personal experience my GP has been useless in my ms journey,DX 2 months ago. Hope yours is better Gray x

3

Hi nicola I was just dx today with MS and have been put on the waiting list for meds and told an MS nurse would contact me soon. I had two relapses in the last 4-5 months and one over a year ago when this all started. I was told i meet the criteria for meds i think u need to have so many relapses within a certain time frame for meds. I am new to this so somebody with more experience with all this could probably give u more info. Hope you r well and have good suport at home its hard to get your head around all the info. charlene