Hi, I have been diagnosed with ppms 3 weeks ago, and I have no idea what’s in store for me. It haven’t been able to work since November and as as a Valentine gift, they revoked my license. I feel as I’m getting worse as I can only manage to get around the house holding onto things and I need a stick to walk outside, but then I can only manage about 50 metres before I have to stop. I’m struggling so hard with coming to terms with it all, I always used to be so active.
I’m sorry that you’re going through such a tough time. What support are you getting to cope with the changes you’re going through?
I’m so sorry to hear about your diagnosis and losing your licence is a massive blow
Have you been referred to a nurse at all? I would make this my starting point if you haven’t. You need information and advice and a discussion about managing your symptoms. Have you family around you?
I’m at hospital on the 9th with the neurologist, I’ve not been referred for anything yet, and I’m still trying to take it all in, my license was my livlyhood as I was a HGV driver, I do have family around, but I feel bad for asking them for things all the time.
Hi Surfer welcome to the boards. Sorry about your diagnosis, hope you find some answers to the questions that are no doubt rushing round your brain at the moment.
While this forum is for the newly diagnosed, there is a forum specifically for PPMS and an Everyday Living forum that is about MS and anything else you want to talk about. Everyone is welcome anywhere on the site, I have SPMS and I flit all over. You’ve probably worked out the system by now, I’m off to Everyday Living to see what’s happening today.