Hi it was a little hard for me to read your posts as they reminded me so much of myself after I got my diagnosis, it took me a long time to find myself again but I did. yes I have ms but ms doesn’t have me nor does it have you, you will get there it just takes time.
WOW so proud of you right now. You are getting there. 17th is not that far away by the time it comes round you probably wont need it lol.
It is hard really hard, i had to cope with my MS, and the loss of my hubby my carer, my anxiety hit the roof, but talking it through helped. I still see my councellor now and then.
I can assure you the dog will be loving all the attention of walks lol, and the fresh air is so good for you. the old you is still there. remember small steps. big hugs no HUGE big hugs. xxxxxxxxxx
Hi Em3a
I’m sorry to hear you felt the same as I do in the past, I wouldn’t wish anyone to go through it, but it’s good to hear you are much better and there is light at the end of the tunnel, that really helps, gosh I think I would be lost without this forum right now. X
Morning crazy chick
I’m sorry, i can’t even imagine how horrible it was for you, when you lost your husband, and dealing with your MS, I can see how your anxiety hit the roof going through a bereavement and dealing with MS also, I’m definitely going to have counselling as you did as talking these things through does seem to help.
Ha the dog walks, well if you new my dog Oscar he’s a chihuahua, hates the cold, exercise too so when I get the lead out he hides . He does the slowest walk ever going out, but the fastest on the way home, he’s a right character.
Big hug to you too xxxx
Hi Sop. You have been given tons of brilliant information and tips. It definatley helps me unwind when I walk my dog. Your dog sounds really funny! my dog loves going for a walk unless it is raining which is weird as I live right by the river and she is always in the water. They are such funny creatures but I wouldn’t be without her!
Hey Sop - you are still in the really early stages. From reading this thread it really does illustrate how different people cope so,differently and what ever works for you is ok so long as not dangerous - like a crazy diet. I was diagnosed June 2010. I work in a hospital and for me I really needed to know the doctors rules on MS so I read the NICE clinical guidelines for MS. This helped me as I was getting up loads at night to wee - nocturia - the NICE guidelines say a tablet called Desmopressin should help and it did. I call it my magic tablet.
I was prescribed Temazepan on diagnosis without being asked. Didn’t take it for ages but then other distressing non MS things cropped up so I started taking them. I do find if funny the label on the packet of sleeping tablets says warning they will make you sleepy - really!!! If you still feel sleepy the next day don’t drive - I don’t feel sleepy and so do,drive the next day with no problem.
I got on Disease Modifying Drugs ASAP - to reduce relapses. Started off on Rebif an injectable one but now on an oral tablet Tecfidera - much better for me. You do,have to,meet certain criteria detailed in NICE guidelines but I do believe that you can get round this with certain consultants. In some countries I believe Germany for instance as soon as MS diagnosed straight onto DMDs. It will all be money issue that the UK perhaps is wanting to delay the expense for as long as possible. I believe mine are £18,000 a year - but I think as keep,me as healthy as possible a cost saving in the long run.
definately keep,your cycling up it really should help with wellbeing and sleep.
Another really important bit of advice that I would like to give you is when you are down, anxious or just pissed off do consider phoning the Samaritans. I,was,worried about phoning them initially as thought you only phoned them if you want to,kill yourself - I don’t and it’s not the case anyway - but they really are just a fantastic listening service where you can talk about anything you want - they’ve heard it all before - so no,they can’t really solve your problems but I always feel so,much better after I have spoken to them and cried down the phone. I,find it useful,when I have exhausted my husbands ears just to talk to an anonymous away from the family’s day a non judgey person. They have a free phone number even from mobiles 116123 - you will be put in a queue but not for long. Available 24/7
so,that is my waffle over for tonight. Apologies for any spelling or grammar mistakes!!! Etc
hugs and love
Min xx
1 Like