Hi,
I was diagnosed with MS a month ago. My first symtom had been loss of vision in my right eye and this was investigated by the eye hospital and then in March I went to my GP about severe numbness in my right foot. I had an MRI following the eye problem but subsequent follow up appointments had been postponed so my GP requested the results which told of more than 5 lesions and clear evidence of demylation, he then did a blooming great job at getting me seen very quickly by the Neurology team. In conjunction with the numb foot I began to get a whole other set of symptoms that made me feel quite unwell - dizzy, achey, tingley, tightness in my face and head etc. and of course fatigue but I am no stranger to that!
When I went to the Neuro appointment I saw a registrar and he took a full history in which I told him of a possible earlier episode that I hadn’t reported - severe and almost constant eye twitch in right eye last July that lasted 2 weeks. He confirmed that I most likely had MS and did a series of physical tests and then let me go saying I would be referred to the MS specialist team of Neuros and he would get an MS nurse to contact me.
Since then he has phoned to tell me that I will need to have an LP and some blood tests but the appointment for these has not come through. The appt with the MS consultants was initally booked for 23rd August but a new appointment arrived in post recently for 3rd July. I have chased the LP tests but the hospital that houses Neurology is in the process of moving to another hospital and I am aware I need to hassle them weekly to ensure those tests happen before my MS Neuro appt.
What I’m a bit confused about, and maybe I’ve read too much here or elsewhere, is am I likely to be offered drug treatments at my next appt? Whilst I do feel generally unwell, is it a good idea to start on the drug treatments now? Or should I just wait and see how I cope?
I am coping and in my job this is the most stressful time of year, so I am determindly coping day by day, but I am aware that I can only do this for so long without feeling worse and I also have 2 very young children who light up my life, but also sap my strength. If I am offered DMDs do others here think that it is best I have them or should I just carry on coping with the less sever but eaully debilitating syptoms I have?
Sorry very long post and I think I’m off to bed now so don’t ruch with supplys, but any advice comment you make will be welcomly received
MJxx