I was diagnosed with MS last week, following investigations that really started in October 2025.
I had what I now know to be optic neuritis, but the eye clinic passed off as a Pseudopapilledema. It cleared up within about 8 weeks, but then I had another flare up of it in January and that’s when it started to be taken seriously. I was given steroids the second time and it cleared up in around three weeks.
Following this, I had an MRI head scan which showed a few lesions, so I then had an MRI spine scan and a lumbar puncture which confirmed the neurologists’ suspicions.
Overall, I’m feeling very positive about the diagnosis and I have my first appointment with my MS nurse this Thursday, to discuss treatment further. My neurologist suggested that I get started on Kesimpta.
So far, I’ve not had any other symptoms apart from some slight tingling in my lower torso - I also had numbness down my right side in 2023, but unsure if this was related or not - it was investigated with a blood test but nothing showed and it did disappear within a couple of weeks.
I’m fit and well, currently training for a half marathon, have never smoked or taken recreational drugs, so I’m hopeful for the future.
This seems to be a very supportive environment so I look forward to using the forum in the future!
Hi, im currently going through diagnosis i am 36 as I had optic neuritis, 3 weeks ago now along with numbness, severe faituge and walking issues… this is not my first flare but the first time ive been taken seriously by anyone and not given painkillers told oh it’s probably fibromyalgia whichbstarted in 2021
Im still in my current flare and was given steroids to which I’ll be honest I feel like the steroids have made me feel worse
My regular symptoms daily then seem to be fatiuge, dry mouth, urgency to were and always either tripping over or dropping things
Welcome to the forum @jhibbs93, we’re a friendly bunch
There’s lots of info and support on here, I hope you find it useful.
Your MS nurse will be a fount of knowledge.
You might also like to look if there is a local MS Society group near you. You can search on the MS Society website.
My group is great and very active with lots of meet ups and a weekly adapted Pilates class which I do, as well as other things. The people are generally very friendly and kind and welcoming.
I completely understand. I am 35 and got a diagnosis of RRMS in March 2026.
I had a huge flare up for weeks that was getting progressively worse, only found out because my colleagues raised concerns and i was taken to walk-in centre. I did see a locum doc, but i was told it was just stress.
I had CT and 3 MRI scans, had 2 injections and i now start my infusions in June.
I am glad you’re feeling positive about it, and have a diagnosis, it’s always scary not knowing.
Hope you’re well and continue to stay positive throughout this journey.
thank you for sharing this, and I hope you’re well.
snap! a fellow newly diagnosed with RRMS at age 32.
I’m sorry to hear about your diagnosis, but glad you have maintained optimism! I would suggest you cling to that optimism tight; I have this feeling that the mental battle can be as tricky as the physical, at least in my experience.
I would also say use this forum - it’s full of kind and help people who, to some extent, know where you’re at. also use the MS society nurse helpline, which is a great resource. keep on training and exercising and not smoking/taking drugs, and enjoying things, I suppose… someone on here told me, w/r to exercise, use it or lose it! so I feel very much inclined to use it.
keep on living well and feeling positive, and I hope your specialists guide you to the right decision. for what it’s worth, kesimpta would be my choice as and when I get started on meds
a warm welcome! I hope you know you’re not alone with it
