Newbie waiting for brain scan

Any advice for getting my MRI brain scan and cervical spine plex?

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Hi,

Welcome to the forum. Sorry you’re going through such a lot of stress.

Obviously, the people on here, who might respond to your post, will generally be people who do have MS - since it’s an MS forum. So you’re not going to get a balanced picture of ā€œwhat happens after being referred for an MRIā€.

The best source of information is your neurologist. Unfortunately, it’s pretty frustrating to be told: it’s probably not MS (but it just might be). It leaves you wondering… exactly how likely is it, then? Can the internet tell you, somehow, what is wrong, given all the information out there…? It’s so hard to be worried about what might be wrong with you and to be left just waiting. MS is difficult to diagnose and it can take several scans and appointments.

How can you cope meanwhile? A few ideas…

Firstly, keep your mind occupied if you can, with other things that take up your attention.

Secondly, get some physical exercise. It may help you cope. It’s good for people with (and without) MS. Neurologists often recommend people with MS take vitamin D. You could check what the NHS recommends as regards vitamin D …check what is safe for you with a pharmacist/GP.

Third idea: write down your symptoms, your fears. That way, when you eventually get to a neurologist, you have it all to hand.

Fourth idea: At your appointment, if relevant, be ready to ask what the next steps are and how long that will take. Ask how to get in touch if things change between appointments.

If your own neurologist says it’s unlikely you have MS, I think you just have to accept that as the best information you have.

I don’t think there’s much you need to do except wait for the scan results. That’s going to be very helpful information for you and your medical advisors.

Don’t worry about the problem of distinguishing between ā€˜hard’ symptoms and ā€˜all in the mind’ symptoms. I think most of us have struggled with that - we’re all one organism and everything is connected to everything else, so the distinction (if there even is one) between mind and body isn’t always helpful.

Slight tangent, but not entirely unrelated: I was hearing on the radio today that the the microbial tenants in our guts are a vocal part of the feedback loop that decides what we’re going to eat and what sort of mood we’re in. And the really clever thing is that we still feel that we’re in charge or choosing which sandwich!

Against this background figuring out for ourselves what neurological symptom is a ā€˜real’ symptom and what’s an ā€˜all in the head’ one is a forlorn hope, isn’t it? :slight_smile:

But the scans are as close to cold, hard fact as we can get. They’re not perfect, and neither are the people who report upon them, but they’re very, very good.

Hi there. I’m not quite sure what your question is. Are you seeking advice on how to get a scan, what the scanning process is like or on how to deal with the results?

Just wondering what to expect!

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From the moment I was told lesions were found on my brain and there is a possibility of MS, it was as if something had changed to my thinking. I purposely avoided negative situations. I worried myself sick what will happen next?

I suppose what I am trying to say is there is no particular way to knowing what to expect. Your whole story already is different from mine. You just have to wait and see what unfolds, whether it be a MS diagnosis or not. I know not knowing what to expect is hard. You may as well walk into a room full of strangers in an unfamiliar place. Good luck x

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This is exactly where I am now… lesions found and seeing an MS specialist soon.
I thought I was just reading my own message reading yours… Crazy to think there’s someone else going through the exact same thing at the exact same time!

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I’d say expect the unexpected and don’t hold out for all the answers to all your questions. I was fully expecting an MS diagnosis a year ago but it took another year to get it. :smiling_face:

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