Forgive me if I get anything wrong, this being my first ever post, and one of the few times I’ve started to swallow my pride and ask for help and advice!
I’ve just this week been diagnosed with SPMS by my consultant, and am at a considerable low. Work have reduced my pay to less than half my salary so I can’t pay the bills or heat the house, and my relationship is now starting to suffer as well.
I suffer from a whole panoply of symptoms, difficulty walking (I use canes and a wheelchair), speech and memory problems, lack of co-ordination, muscle spasms, trigeminal neuralgia, and numbness and pain in my limbs to name but a few (plus semi-controlled epilepsy) Yeah, I get help from my local MS nurse and physio, plus under the care of 2 neuro consultants as well.
What I guess I’m trying to say, in a roundabout and verbose fashion, is what other help can I get (in particular financial). I don’t want to be in a position where I can’t pay the bills and the rent, work fire me, and I can’t support myself. Applied for PIP 3 months ago, but have only been told I have to wait for an appointment, and my symptoms are progressing fairly speedily. What can I do? How can I stop my life crumbling around me? How can I even start to secure a future for me and my other half?
Any advice would be appreciated, and thanks in advance!