Ok been a while… Had the results of my latest MRI and I have new lesions on the frontal lobe and the c spine. While this was not a massive surprise, it was still a bit of a shock to get it by letter. (letter was delayed as the idea was it would give me time to decide on my new drug, however it’s turned up 20 hours before I see my consultant tomorrow) My question is. Has anybody been/is on Azathioprine?? What can expect and side effects? Cheers Strudders
Hi I started on beta-interferon injections about 12 years ago but was having far too many relapses, so they put me on Aziathioprine, was on it for about 3 years with no major relapses but again had to come of it as all my white/red blood cells were showing signs of possible future problems eg kidney/liver failure. Be prepared for regullar blood tests if you decide to go on it. Hope this as been of some help to you. X
Thanks Bambi Been a funny day, we discussed going on it in August when I was having a relapse and he had said my MS was more progressive than standard RR. So when I got my results letter today was a bit taken a back by it. Will be seeing my neuro tomorrow so will talk it through as this really is my last chance of any DMD’s due to my continued decline. Thanks
Good luck for tommorow hope you get sorted X
I’ve been on Azathioprine for about a year now at it has kept my MS stable, no relapses no progression 
Thanks Dave, that’s good to know. Well not exactly what I was expecting from my appointment. Seems I am back in limbo land as they want to do a new test for NMO. Now this is not the first time I have been labeled with this but it was ruled out due to a negetive Aquaporine 4 result. However there is a team in Oxford who would like to do a test on my blood for a variant not dependant on Aq4 Also my Azathioprine is dependant on my bloods so fingers crossed… sigh