Hello, I don't know if I am doing the right thing but I am feeling a bit of at a loss of where to turn, I'm turning to you.
To cut a long story short five years ago I started to feel poorly, very yuk, lost a lot of weight, numbness, pins and needles, migraines, weekness, extreme fatigue, I was off work for 6 months and then for the following five years felt like I dragged myself into the office with various things coming and going along the way and various gp visits.
I was dignosed with ME in 2008. Then In April 2011 at a routine visit to the opticians I was told my right pupil was dilated, GP requested MRI, this took 6 months to come through, in that time, my feet went numb and I had a severe attack where in one night my hearing went, vertigo, double vision, frozen face. A week later the MRI date came through, docs were still saying ear infection, I think they were as shocked as me when the lesions showed up on my brain and spine. Although my husband and I were devastated it then became a relief to know that it wasn't all in my mind and I wasn't going mad.
Anyway I saw the neuro two weeks ago and he has given me the four choices of DMT, Wow minefield or what, what do you go for? I know they effect everyone differently, I have a 6 year old and want to be as normal mum as possible with as few side effects, Ive kind of narrowed it down to Rebif and Copaxone. My numb feet are getting worse and the numbness is now in my knees and up to my thighs. My MS nurse says it could be the cold, I'm frightened to death is it another relapse and what this will mean. 9 months ago I was living a normal life and now I'm feeling like my body is slowly falling apart. Can anyone help with some words of encouragement. I feel like I should be getting my head round it all now, my family say think positive, its so hard!!