New diagnosisg

My husband was diagnosed with relapsing ms on 9th January. After having mri scans and seeing a neurologist in august last year he was told that he had demyelination. We didn’t even know what this meant but, were told that it could lead to ms. Then he was sent to another neurologist for a second opinion and after more tests was told he does have Ms. Although we knew it would probably be the case at a later date, we were absolutely devastated. I am finding it so hard to come to terms with it. My poor husband is the one suffering and having all the dreadful symptoms ie dizziness all the time ( whilst walking about) and constantly needing a wee. I’m so frustrated that I can’t do anything to help him. I feel so alone and am so glad for this website. I don’t have any support at all from my family but, my husbands sister and her husband have been very supportive. I am so worried for our future and all the plans we had.can our lives ever be “normal” again.I am trying to stay positive but am finding it very difficult. I know things could be so much worse. We have an appointment in March with the ms nurse to discuss medication so hopefully things will improve.

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You are doing all you can to help by being a steady, kind, loving presence, who is with him every step of the way. I cannot tell you what a blessing it is for the person with MS to have someone like you. Please do not ever underestimate the value of your loving presence.

You have both had an awful shock, and such news is painful and difficult to process. You will probably go about this in different ways and at different speeds, but that’s OK. Just try to be patient with each other when the other one is having a down day. These will happen, and that is OK too. The early days after diagnosis are notoriously tough, as most of us in here - me included - know. But we are all more resilient than we think, and something that looks surprisingly like normality will usually reassert itself sooner than we think. The new normal might look a bit different, but you will find a way of dealing with whatever comes along.

Thank you for your lovely kind and encouraging means so much.

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