Have a look at the tab on the top of this page marked ‘Get Involved’. Then scroll down to the bottom to ‘Find support near you’. Put your town or postcode in and see what support groups, MS centres or other services are available in your area.
It’s sad but true that our family and friends may want to help, but often they can’t. Unless they know what your MS is like for you (and no two people experience exactly the same symptoms), they can’t really get it.
Keep talking to your mum, she’s probably devastated that you’ve been diagnosed and just wants to help. Plus your husband, being male (excuse the massive generalisation please), he’s not going to find talking about things so easy. But again, keep trying. Just keep in your mind that while you’ve been diagnosed, it will affect his life just as much.
As for your friends, sadly they often think that by looking at you it seems life just goes on as normal. They don’t understand. You can try telling them, but if you find you’re not being supported, be prepared to put less effort into those friendships.
Re your private tests and having to be re-diagnosed, make sure you get a complete copy of the results from the private neurologist you saw. There is absolutely no reason for having another LP. Getting full results, and having these backed up by new NHS MRIs should be sufficient. If the doctor wants you to have another LP, ask why and what information that will provide him/her with that’s necessary for diagnosis. The fact is that not everyone with MS has a positive LP. It’s not a requirement for diagnosis (see https://www.mstrust.org.uk/a-z/mcdonald-criteria ).
Meanwhile, keep talking to us on here, we may only be ‘virtual’ support, but we do try our best.