I finally got my diagnosis yesterday after a 4 year battle trying to get a GP to refer me for an MRI, sadly I have spent many of my GP appointments being told that it is my mental health causing it and many times being prescribed medication for a trapped nerve. Today I feel frustrated because of how long it has taken when I could have started treatment a lot earlier. I am 26 and its all very daunting but nice to have a community I can reach out to so thank you!
I really know nothing about the types of treatment as I am waiting for some more tests so if anyone could shed some light on what that looks like and your experience I would be very grateful, lots to learn about x
Sadly, a frustrating battle to be taken seriously is not at all unusual in the world of MS, a diagnosis is seldom quick. So, now that you know what you’re dealing with, give yourself some time to come to terms with it… relax a little… get those final tests over with. Your MS team will then talk you through the various treatments availble.
I don’t think there are many of us on here who don’t wish something about our dx or treatment or timing of treatment had been different - me included. But your history of just not being heard is particularly troubling and must feel hard to take. I am sorry that you have had that experience and I hope that things stay on a much more positive track for you now.
Yes i got diagnosed 4 years ago . The doctors kept telling me it was anxiety, it was a battle. Even when i git optic neuritis i had to battle to get sent to the hospital. Xx
Sadly I feel this is the situation for many with mental health problems and also a lot of women in general. It wasn’t taken seriously by all the male doctors and once I managed to speak to a female doctor the referral was made for the neurologist. Wish I could say it was coincidence but 4 years later I can’t help feeling like there was some unconscious bias because I’m a young woman, well I hope it was unconscious!
My physio found it laughable that the doctors didn’t take it seriously when a 22 year old (when I first got symptoms) came to them with double vision and numb tingly legs as it screams BRAIN
