Hi all. I’ve just been diagnosed with MS by my neurologist. I’m a 30yr old male. I was surprised I didn’t need a lumbar puncture or all the things you Google but he went off some basic day to day symptoms plus 2 MRI where I had more brain lesions between two scans. Anyways, I’m suddenly so fatigued and tired and I don’t know if that’s one of my 2 meds I’m on for other issues or the MS showing or all.. I have daily headaches which are treatment resistant so far but he said they are not linked to the MS. I have a few ailments and struggling to deal atm so wanted to chat on here and look for advice also. Thanks
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It appears that headache is a fairly common symptom in MS, so might be related to your problem.
MS & headache: another elephant in the room
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Hello @danc . Sorry to hear of your diagnosis. I see from your previous post that you had sort of advance warning some time ago but I know from my own experience that the formal diagnosis still comes as a shock and as a lot to deal with.
I was diagnosed around 19 years ago and now struggle with walking plus some inconvenient bladder and bowel problems.
Just wondering if you have been offered disease modifying treatment? I’ve been on Avonex for those 19 years.
I get headaches from the Avonex but they pass. I guess that you have seen your GP about the headaches?
All the best
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Hi, sorry to hear your struggles but thanks for sharing. That’s why we’re all here I guess in different stages to share stories. Yes I’ve been to GP about headaches, I’ve had them daily for years chronic headache and I have a headache nurse but nothing is working yet and I’m sick of them. Anyways, so when my neurologist confirmed MS he has put in a referral for DMT and another MRI so just another waiting game!
Dan 
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Cheers. After 19 years and approaching my 72nd birthday early this summer I suppose I think I’m not doing too bad. The challenge is to get to 80 and still be walking however unsteadily 
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None of my business and apologies if I’m intruding but could your headaches be ‘tension’ headaches, or something to do with diet/ allergies to food stuffs, sugars etc etc?
A long time ago I used to get migraines every now and then. Fortunately I just sort of grew out of them.
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Im in the same boat i got diagnosed on 23rd December 2025 i feel fatigued constantly and in Limbo awaiting next stages balance all over place also. feel for you as i feel alone also sometimes
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You’re doing grand! And no I don’t mind you asking at all! So far from my own process of elimination I can’t find a root cause of my headaches aka stress, sleep, sugar, water intake etc. I just wake up with a headache, every single day, so that’s why they thought it’s not linked to the MS. But hey ho! It’s a pain! literally haha
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That’s what this forums for to chat and feel less alone. I’m so new here but reach out anytime! The waiting game for anything including scans treatment etc etc is a nightmare isn’t it
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I’m really sorry you’re going through this that limbo and constant fatigue can be incredibly hard to cope with.
You’re not alone though, even if it feels that way, and it really does help to talk with others who understand exactly what you’re feeling.
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Hi @danc
Welcome to the forum They are a friendly bunch here and I have found people to be very welcoming and kind since I started posting after my diagnosis in September 25.
I think fatigue is a really really common MS symptom. Our bodies are working so much harder to get the nerve messages to move around, no wonder we are tired!
There’s a page about fatigue on the MS Society website which I think includes some ways to manage it and possibly a free online course you can do. Might be helpful
I wish you well,
Alison
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