Neurologist dismisses me

Hi there

I was diagnosed 3 years ago, my Neurologist simply wrote Radiological MS. He is so disinterested. I am in pain all the time my shoulders, arms, legs and he said I simply cannot have pain there because my lesions are in my brain not my spine. I despair. Every year I have new brain lesions. He refuses to entertain me. Can someone shed some light on if lesions locations affect different parts of your body?

Thank you and stay safe X

I have a lot of experience in it but am not a neurologist.

Lesion site can cause problems ANYWHERE regarding ANYTHING.

Sorry the neurologists communication skills are lacking.

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Thank You for validating me. I am so frustrated with my Neurologist. Would like to change but not sure how or if it would mean I get lost in the system. Wishing you well.

Hi, welcome to the site.
Unfortunately some Neurologists belong to the breed of consultant that think they’re god!

You can either tell him you want a second opinion (or ask your GP if there is someone else they can refer you to), or get PALS (patient advise liaison service) involved and explain you’re not happy with the treatment you’ve received. But it would probably be quicker to demand a referral to a 2nd opinion, depending on where you are. If you can get a Neurologist who specialises in MS even better, some of them are just general and deal with lots of diseases.
Good luck!

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Hi, welcome to you too.
Is that true about lesion site causing problems anywhere in the body?
I was always under the impression that the type of symptoms a person was getting correlated with where the lesion was located in the brain or spine.
If that’s not the case, then it’s another piece of (mis)information I’ve been given from Neuro. :worried:

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Hi Eastendgirl, we are speaking about a complex system made even more complex through the interplay of immune and nervous system functioning. In very simple terms, a lesion to a major piece of anatomy will cause predictable effects, however, because we are so dependent on everything cooperating with everything, it will also cause effects elsewhere. And that can be anywhere and will vary from person to person. Sometimes it can be a straightforward lesion site = problem x. That is usually to do with movement and some obvious sensory issues like tingling. But even these differ from person to person. Sometimes we are speaking in sensitivities about our issues when medics think in absolutes, i.e. either works or doesn’t work. When it comes to the nervous system no two cases are the same, even when the lesion site is in the same place. Some things may overlap, but the problems will differ.
Who we are ultimately runs through our nerves.

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