This is not particularly groundbreaking stuff. It’s been prescribed for years for MS fatigue, but ironically, seems to have only just hit the press, as it’s becoming almost impossible to get, for new prescriptions.
I think the crux of it was there was some EU ruling, due to concerns about its proliferation as a “lifestyle” drug (shift workers, students cramming for exams - people who weren’t ill at all, in other words).
So there was a directive that it could only properly be prescribed for narcolepsy.
Of course, this totally ignored the thousands of people with MS (and possibly other fatigue-inducing conditions too), who might potentially benefit.
It seems if you’ve already been on it for years, your prescription will usually be protected, but if you’re a new person wanting to try it for the first time, your chances are slim indeed.
So amantadine or nothing, for most people, and I’ve not even been offered amantadine. I’m just fobbed off with the view that my fatigue is caused by my other medication, and not by MS at all.
I’m going to have to complain about it more forcefully at my next appointment, as I’m losing literally half of every day. I’m not just tired, but asleep. I don’t get up very early. I often go for a walk about lunchtime, come home, have something light to eat, then fall asleep until teatime. Afternoons hardly exist for me. I don’t think this is really acceptable.