I’m so unwell at the moment and have got progressively worse since December. I have sensory issues, tingling, burning, prickling, numbness and weakness in my left hand and have been back and forth to see my GP who referred me to neurology.
I went private for my appointment today and it was such a waste of time. I am so incredibly upset. The neuro didn’t even take the time to look at my GP notes and then said it sounded viral. He did not test reflexes and did a less thorough check than my GP.
My bowels aren’t working at all at the moment and I can’t pass any wind or stools. When I do it’s a real struggle and needs to be digitally stimulated. I asked if bowel issues were related to MS and he said ‘only in the very late stages’. I know from reading this forum and other resources that this simply isn’t true.
I had a brain MRI earlier this month which was apparently clear. The one positive is that they will now check my spine but this may be in weeks or months, meanwhile I continue to decline with a baby on the way and a house to provide for.
I have a lot of telltale signs of MS or ALS at present and, despite telling him how much this was impacting my life, he could not have been less interested. I mentioned my fasciculations and he didn’t even entertain the possibility of ALS. He simply said he would order a brain and neck MRI for a few weeks time and we’d have a 15-minute consultation to discuss.
I have rang the private practice to complain as he spent less than 3 minutes with me and was so unprofessional. My life and health are in tatters at the moment and I just want some answers. I really don’t know where to go from here but wanted somewhere to vent.
Did anyone else suffer significant constipation in the early stages of their disease? The burning, prickling and tingling in my limbs is so uncomfortable I’m barely sleeping a wink and my cognitive function and strength are also declining massively.
I feel like I’m living one big nightmare at the moment and I hoped this neurology appointment would be a step in the right direction but it was awful.