Three years ago, before ms diagnosis, I had some rectal bleeding & had a colonoscopy. After sedadion & excruciating pain it was abandoned due to bowel spasm (radiographer said scar tissue prevented the camera getting around).
Then I had a barium barium enema to X ray the bowel. Results were negative for cancer so that was that.
Over 10 years of pain, memory problems, occasional double vision, spells of dizziness f
eeling dizzy etc, I was beginning to feel I was a hypochondriac.
ok over 9 years of seeing neuro psychologists, rheumatologist, stroke clinic before I even saw a registrar in neuro dept. He arranged my 1st M
RI & told me I have RRMS.
I changed hospitals & gp. I saw the MS nurse 3 times yet not a neurologist consultant. Eventually I saw a registrar who took notes & said I have
PPMS as no relapse & I was 52 before symtoms began which are slowly getting worse.
I have never seen a neurologist consultant! I see an MS nurse twice a year.
For 2 yrs I have double incontinence & my gp referred for thorough tests as some bleeding. I told him the colonoscopy was abandoned & so a Sigmoioscopy & Colonography were done this month with 2 weeks between each test. The Sigmoioscopy was successful & showed 2 very tiny polyps which they removed, 3 haemorrhoids & a couple of tears around the anus.
I obviously had the preparations to clear my bowel. Severe & painful due to the haemorrhoids & tears - so it felt like I was walking with broken glass from my bottom!
After the Colonography (which was relatively easy & not too painful) there was considerable liquid residue which burned the tears & raw skin rash - I literally couldn’t walk.
I’d tried Vaseline then barrier creams of Bepanthen & Double Base. My terrific new gp examined me (eugh) & all it took was Lidocaine 5%. to stop the burn & glass feeling. Oh the JOY & RELIEF.
I’m considering going private to see a consultant neurologist as I feel lost in the maze. Just having him/her to confirm ppms & then get back to nhs MS Nurse for support or counselling. I’m trying to come to terms with losing me & my abilities but my daughter thinks I’m not accepting that everything is different for me.
Sorry for such a lot of moaning when I know there are many in worse conditions.