hi everyone. I thought I had my nerve pain under control, but recently I am getting terrible pain at night. I take 150 mg twice a day and that is working, but at night I take 275 mg and 50 mg amitryptiline, that was working until recently, the last 4 nights I have had to take an extra 10 mg amitryptiline, and the last 2 nights that helped me to sleep, but at 6am I have been woken up with really bad burning, crushing pain starting in my forearmand quickly spreading to cover all my left side. I could understand it if my pain was on my right side cos that is the side I broke my leg and had it re built, but I have no nerve pain there at all, strange! Can anyone help please,
You could ask your GP about Gabapentin,Lamotrigine,Pregabalin, Duloxetine,Carbamazapine and Butrans patches.None of these supposed pain killers are MS specific or particularly expensive. I’m guessing that you’ll have a wait to speak to an MS Nurse or a Neurotic.
These are some of the drugs that I have taken and a couple of which I still dabble with.Are you getting hot or cold whilst you are asleep? Something may be triggering the pain to ‘Light Up’.
I take 150 mg twice a day and that is working, but at night I take 275 mg [/quote]
Hi Lynne,
You don’t say what you are taking 125 mg and 275 mg of…
Woblyboy gave you a comprehensive list of medications to help with nerve pain but the doses you are on are quite low for most of those drugs. For example I am on 900 mg of Gabapentin and 600 mg of carbamazepine and they aren’t considered super high doses.
Let us know what else you are on besides the amytriptiline.
Ive just been told to restart my amytryptiline and baclofen for nerve pain down my right leg. It seems to be helping. Yes do ask for meds because even though they dont take away the pain completely they help our systems calm down, thus easier to live with.
You don’t say what you are taking 125 mg and 275 mg of…
Silly me, it’s pregabalin and I made another mistake on the dose! I blame my MS brain! I should have said I take 150mg twice a day and 275mg at night. That is a total of 575mg a day. I thought the limit was 600md a day so didn’t think I could up the dose
