Just how many different drugs/medication are being prescribed for pwms
Just name the drug(s) you’re on and say if it’s effective or not.
Hi
I take
Baclofen 30mg per day - no help at all, but I think it does help most people
Tizanidine 20mg per day - some help but side effects are pretty unpleasant
Detrusitol - very helpful but effects reduced by Baclofen and Tizanidine
Carol
Cladribine twice a year for 2 years (an experimental form of chemo being used as an oral DMD) - No relpases in last 9 months since starting it 
Baclofen 50mg - helps the spasticity but doesn’t get rid of it
Sodium Valproate - 600mg for migraine prevention and neuropthis pain. Great for pain, cr*p and stopping migrasines
Tegretol 400mg - for trigeminal neuralgia. A godsend. Literally couldn’t function without it
Vit D 4000iu - due to deficiency, slowly increasing my nmols and will saty on it as a preventative ‘got to be doing something good’ drug
Magnesium - restless legs, helps a lot
Valium 5mg - as needed for breakthrough spasms
Citalopram 40mg - antidepressant.
Belinda
PRESCRIBED MEDS, per day unless otherwise stated:
Rebif 44mcg (3 times a week) - it’s working (YAY!): back to back relapses 2010/11, one very mild one very early on into Rebif injections but nothing in the 7 months since
Baclofen 3 x 10mg - for spasms: it works, but I’ve just reduced it by 10mg to check I needed 40mg and it turned out that 30mg is fine. I might try 20mg soon…
Modafinil 2 x 100mg - for fatigue: lifesaver.
Pregabalin 2 x 75mg - for neuropathic pain & spasms: it works - probably should take a bit more, but what’s left of pain is manageable and it took me ages to build up to this dose.
Omeprazole 1 x 20mg - for IBS symptoms: tbh, I’m not sure if this is doing anything, but it does seem to work in tandem with…
Spasmonal Forte 2 x 120mg - for digestive spasms / IBS: it works.
Loperamide 1 x ?mg (can’t remember) - for chronic diarrhoea / IBS: it works.
Vitamin B2 400mg - for migraine prevention: it works!!! (recommended by a migraine specialist).
Sumatriptan 100mg as needed - for migraine: it works.
Domperidone 10?mg as needed - for nausea (caused by migraine and IBS): it works.
Zopiclone 5mg as needed - for insomnia: it works, but I take them as little as possible.
UNPRESCRIBED MEDS, per day:
Paracetamol 500mg as needed - 8 on Rebif days & variable for migraine, with the sumatriptan
Vitamin D3 5,000iu a day alternating with 10,000iu a day - who knows, but it’s not doing me any harm and my levels used to be too low.
Vitamin B12 500mcg - who knows, but it seemed like a good idea.
Omega 3 oil 2 x ?mg - who knows, but it was getting good press. Not sure now though because recent research says it doesn’t do anything for MS. I’ve got plenty left though and I don’t want to waste it!
Calcium (with zinc and magnesium) 2 x ?mg - my levels get low when I don’t supplement and there is oesteoporosis in the family.
Can’t think of anything else (there’s a joke in there somewhere, when you look at the length of this list :-)).
Karen x
Just realised, I should have put that the B2 helps massively to prevent migraine, but I do still get some (for which I take the sumatriptan and domeridone).
Kx
Hi, my list is similar to Karens and Belindas, but here goes
Amitriptyline…75mg at night for nerve pain…this is a wonder drug for me, as I had excrutiating pain in my thighs and bum cheeks
Baclofen…30mg a day…it reduces spasms and spasticity…but not enough.can`t increase it as it makes me unable to weight bear
Quinine…300mg at night, for restless legs…quite good
I also take 3 types meds for high BP,
Laxido and senna for constipation.
simvastatin to lower cholesterol
lansoprazole for acid reflux, due to being squashed up all day in a wheelchair!
other non script meds;
omega 3
glucosamine
That`s it!
luv Pollx
Thanks - didn’t realise one individual vould be on so many different drugs!
I’m taking rebif 44 - yes its working!
Vitamin d3 (5000iu) and multivitamin - no idea if helping or not. Will have blood test later in year to see if vit d level has gone up as my last test was slightly low so started suppliments. Not sure whether to start vit b also!
My list is quite short! lol!!
Teresa. x
I find ldn to be pleasingly effective. www.ldnresearchtrust.org.