MS specialist appointment

Have been waiting for this since half-way through August. Have received it today for the 28th of March!

I am furious that I have to wait so long as this delay just keeps deferring my diagnosis which the first Neuro I saw said was fairly certain but she wanted it rubber-stamped by a specialist.

I really would like to leave limbo land now, I’ve had enough! I think I’m having one of those days…

Teresa xx

Hi, just to saying, thinking about you and hope you get a diagnosis when you see the specialist. Cheryl:)

Hi, good luck with your appointment and hope you get a diagnosis. Cheryl:)

Hi Teresa.

That really sucks letdown


Can you get your GP to intervene, or maybe the original neuro?


Karen x

Well I’m going to try the GP first and see if she can help as she’s been really great.

Here’s hoping!

Teresa xx

Hi Teresa.


I was waiting months for a MRI scan, the reason given, the scanner was being used for people with life threatening illness, which was fair comment. Once I had my MRI, things moved at a better pace. Had my lumber puncher, not to long after, but it was then a further twelve months before I was given the diagnoses of PPMS. That was back in 2003.

Take care, hope you get some action soon.


Chris R.

I. El. (Eng). (Rtd).

I know its going to be a bad day when I get out of bed and miss the floor, today is such a day.

Thanks Chris, the waiting gets excruciating doesn’t it? By the way I too am probably PPMS!

Teresa xx