hi dragon lady ( soz just going by your profile name lol)
i am totally with you on what you said.
the media portrayal i have seen on tv of ms has been either the lady who wanted the law changed for assisted suicide or like you say people still working not struggling very much with there ms and the gov i know has latched on to these cases that ms isnt that bad and we feel like frauds when we most certainly are Not!
so dont you or anyone out there on this site ever let the general public and media make you believe you are!
although i apresiate the work the ms soc is doing i really am not in agreement that they are not taking a harder line getting the realties across with both the media and with the government.
it really is about time we were taken seriously there is hate crime against disabled people inc ms and its has to be stopped. i dont see much being done to truely stand our corner and really help us through all this.
ive not seen a proper ms soc person really answer this discussion here and say what will be done to help tackle this. for goodness sake im 33 i cant even walk up and down my stairs safely, cant go out on my own, dont have any proper support a[part from home help twice a week paid with personal social budget. i feel so ill all the time, my mum died with ms complation at 45, my uncle the same died 47 and its about time this was all taken seriously.
your post and others like yours just make me so annoyed and upset and why the ms soc cant use the media more helpfully and positively to show the real!!! sides of ms for whatever stage or type is beyound me. its progressive for goodness sake.
thats not saying its a fast progressive illness or even that it cant stay the same for years but like it or not whatever way you truely look at it , its degenerative, progressice, incurable ( as yet) and makes many people with it struggle every single day.
im very sorry if my description is scarey for some of you, or if ive offended in anyway this wasnt my point.
thankyou for posting im passionate to get this changed and for our socity to be in the forefront of getting results and having a true! picture of ms portrayed in the media areana in what everway that means.
thankyou x moo