Clearly from all the replies so far, MS effects people very very differently.
Someone who still has good mobility will probably give a different response to someone who’s mobility has been affected and is the main problem.
How can someone who’s mobility has not been affected by MS know how a person who’s mobility has been affected fully understand how that person really feels, or how their poor mobility actually effects them ?
The reality is that a person can only comment on how MS affects them as an individual.
Every ones lifestyle is different, before and after MS, every ones degree of MS is different, and how it impacts that person will also be different.
I do agree that you should try to make the best of what you still have, however it can be very difficult if like me you look back and see what you used to have compared to now !
Thats not being negative, it’s being a realist !
Thank fully I don’t have memory or vision problems, and I can only imagine it’s not very nice at all, and must have an impact on that persons life in one way or another, but that’s all I can do, is imagine !
As I’ve already mentioned up until 18 months ago I was still fairly positive that my MS wouldn’t impact mine and my families life if it stayed at the level it was (wishful thinking), but today even though I still try to get to work and do as much as I possibly can, life now is completely different to what it was just 18 months ago.
Theres a young chap who’s on the same Simvastin trial as me, he’s a full-time wheel chair user, has a colostomy bag and has to self catheterise, his mobility is shot, he was self employed with his is own very successful company.
He’s now on benefits struggling to make ends meet, he’s 35 and has 3 kids.
He was diagnosed with MS 12 years ago, for 10 years he held everything together, struggled with his mobility a bit but fought through it, 2 years ago out of the blue everything changed, he progressed very quickly.
As others have mentioned MS is unpredictable, you can be very upbeat about it and grasp life with both hands, and just hope it stays at a manageable level.
That’s what my attitude used to be like, and certainly like the young chap I’ve mentioned.
Please don’t think I’m a doom & gloom negative person, I’m really not, but I am a realist .
After all, I do feel that I’ve gained pretty good experience over the years, and have seen first hand how MS effects people so differently, especially as myself, sister and now 2 cousins (1 only very recently diagnosed) all have this sh*ty disability.