Well thank you MS Society for sending my daughter into a total panic over my MS. I had her on the phone yesterday in tears. Because she has used you tube to learn about MS this was flagged on here channel.
Story of Junior Giscombe R&B singer, who was married to a lady who got ms at 25, and their daughter had it at 24 and both died very soon after diagnoses like around 5 to 6 years. He is talking about PROGRESSIVE MS.
I have been diagnosed with PRIMARY PROGRESSIVE MS, and its known it tends to start later in life, although younger people have had it start early.
Are we talking about PROGRESSIVE MS or AOS, AGGRESSIVE MS classed virtually as a malignant form of MS which hits people around the age of 24 and progressive and life span is short.
I watched it and it make me feel sick to be honest. Yes terribly sad that 2 people in his family had MS and died with it, but really I feel this is counterproductive and scary for others who have families with MS and for those who have maybe recently been diagnosed with Primary Progressive MS.
THE disability scale.
4.0: A person is able to walk without an assistive aid, such as a cane. They are able to stand or walk around for at least 12 hours a day without overly reduced function.
The authors of the study in the Journal of Neurology, Neurosurgery & Psychiatry report that the average time that it takes for a person with a diagnosis of PPMS to reach a score of 4.0 is 8.1 years.
The time that it takes to reach 8.0 can vary, but on average, this takes about 20.7 years, the authors found. The speed at which symptoms progress is faster in people with PPMS than in those with a relapsing type of MS.
Juniors daughter reached number 10 in 5 years, which would indicate a much more progressive form of MS i.e. AOS. His wife was the same.
I am so disappointed with this youtube presentation, it is scary and frightening for those who have family with MS.
My daughter now doesn’t believe me, and is scared for her own health now too, as she knows any disease has a chance to be contracted genetically. I have asked her not to point this you tube story to my other daughter who is having health issues.
Am I being over dramatic i dont think so, as it was my daughter who was upset and now thinks I am going to leave very soon.
What do others think or have you not seen the video?