As Ellie says, experience varies widely. So what my MS nurse does is going to be very different to yours. I feel very fortunate that I get home visits from my MS nurse. And these days it’s very much driven by what’s going on for me. I know her pretty well.
I’d expect him/her to go through your wife’s history, how she was diagnosed, what symptoms she has and of course, the DMD options available to her.
I wouldn’t expect it to be a gentle ‘getting to know you’ appointment exactly, that would be a waste of everyone’s time.
Maybe, just like with a neurologist appointment, it’s worth you and your wife having some thoughts about what you both want to get from it. And with some luck you’ll get a good nurse. I’ve known 5 MS nurses in all, 2 are community nurses and the other 3 work in the treatment centre doing Tysabri infusions, Tecfidera clinics, and now Lemtrada. They’ve all been pretty good. And I’ve never had an appointment where I didn’t get what I needed from the appointment.
Good luck Mrs Ollie.