What should be happening is this . At the moment I’m having a particularly hard time , constant flexing, more difficulty in walking and standing , all accompanied by severe sudden watery diarrhoea ! I should be monitored with live tests being run at a specialist ms unit ! There must be some clues to be had as to what’s causing this if tests are done quick ! Surely if we can nail a cause we’re half way there !
instead we have a constantly incurable condition, with quacks waffling for an hour to get paid and doing pretty much bigger all else ! And you got to go to see them , what a joke !!
I find even going to the ms nurse a total waste of time. You waffle on about your deteriation and what do you get? Nothing! I’ve had more advice on here than I get from them.
Last year when I went the usual nurse wasn’t even there and I got a fill in from another ward hadn’t a clue what I was on about.
I have an appointment in 2 weeks and really can’t be bothered going but feel as if I have to just to keep them in the loop or else I might be forgotten about altogether.
All they ever do is suggest meds that I don’t want to be on.
my favourite saying is theres more than one way to skin a cat, well its one of my favourite sayings the others are unprintable like bug er or sh eye tee
Have a good day its a bit dismal here in Margate but I am all set for the FA Cup match this afternoon
I used to ice cakes for a hobby bbut thats gone now so ive started making home made cards i love it.I started quite basic but im getting better its very therapeutic.If your legs dont work anymore but your hands do give it a go,family and friends will be delighted with them.Keep up the knitting girls its a great job for the hospitals.Jo x