I was wondering how your MS hug affects you? Is it the same every time or does it affect you differently?
The reason i ask is because I have had a few different episodes of what i think may be it but all have been different…
on 4 occasions i have had an awful pressure like pain in my lower right ribs which has lasted hours and is only relieved by putting more pressure onto it? - have had bloods and ultrasounds to rule out gallbladder/liver - No painkiller/anti inflammatory touched it but on one of these occasions i resorted to taking a diazepam and it went completely!
2 occasions i had what felt like pressure around my chest feeling like it affected my breathing but i could actually breathe fine - went to walk in centre and all tests fine
on 2 occasions feeling a spasm like pain in my right upper flank at the back - came on suddenly and lasted around 15 minutes if that - had urine checked for UTI but clear.
on 1 occasion the feeling of something tight around my throat, as if a scarf was on too tight.
Hi, yes I have had crushing hug feeling to bra too tight n uncomfortableness with breathlessness / tight hug feeling in between. Was hospitalised once with suspected pulmonary embolism- nothing.
I have “Is this MS Hug or is my Asthma playing up?” sessions, feels like I have trouble filling my lungs, but peak meter/Oxy Sats are fine; I feel constricted like I’m wearing something too tight around by chest, not at all pleasant.
omg!!! 3 years ago when i was pregnant i had an awful pain in my ribs and they thought i had a pulmonary embolism! i was too hospitalised, given blood thinners and had a lung CT and was all normal…this makes me wonder if it was a hug…
Hi Sian1401, Wow! Can I ask, had you had MS hug before that or since?
I had not experienced before but have had it since, when walking sleeping sitting.
Sian 1401, we need find out more !.
Community Neurology Team- I will call the team Monday and ask if there is anything practical we can try- my GP has referred me to physio, will msg you if any find more info Sian,
Take Care
Dotty6328
Theresa that is it exactly, I’ve never worn a girdle but the hug restriction is very unpleasant and painful ; I was breathless trying to peel vegetables.
Mild days uncomfortable bra too tight feeling but actually not that.
It has me stopped still when out walking in to shop this Winter. Despite my thermals lol.
I don’t think i had ever had anything like that before, but i have had that particular feeling 4/5 times since. It almost feels as if someone has put a balloon into my ribs and inflated it…it has had me lying flat on the floor on my stomach whilst pressing my fist into it to try and relieve it…not a sharp pain just a very intense pressure
