I recently joined this forum after an internet search for my symptoms led me here.
I am still new here and am awaiting a neuro appointment (next week) and MRI (18th May). I have had a few weeks, so far, of pretty scary and disabling 'MS-like' symptoms. The CT scan and bloods I had 5 weeks ago were all clear. This is week 5 of my 'episode' and am recovering slowly. No longer need a stick to walk or a patch over one eye etc. Much stronger now and able to cook, clean and shop again.
What I wanted to ask was:
On a scale of 1-10, with 1 being the mildest of 'attack with mild symptoms and 10 being a severe attack with severe symptoms, how mild would a mild attack be and how severe would a severe attack be?
I ask because what happened to me a few weeks ago was terrifying and seemingly 'out-of-the-blue'.
I woke up one morning numb all down my left side with a pins 'n' needles feeling. Double vision in right eye, feeling sick and dizzy and weak, could not use my left limbs properly or use my hand. At the worst point, about two weeks in, I lost the use of my left leg completely for about 12 hours then was able to use it again next morning but struggled. I could not cook or clean or shop. I am on my own with two kids, one with ADHD. I have Tourettes syndrome myself. I have no friends or family nearby. I am terrified of this happening again and also scared at how much worse it can get. I didn't wash for 3 days when it was at it's worst because I could not stand in the shower or pull myself out of the bath. My hand and foot and eye are the worst effected and and seem to be taking the longest to recover.
There's no dout about it, limboland is not a nice place to dwell.
What is bothering me most is that I have two kids who are dependant on me, they are not toddlers but they still need me and I don't have anyone who can look after me or the kds should this happen again.
I have no support. My kids were scared when this was happening to me (as I was), especially when I just seemed to get worse and worse as each day passed. When my leg gave way completley my eldest asked if he should call an ambulance. I said no and that I would be fine after a rest because I didn't want him to be worried but in my mind I was scared and alone.
The fatigue, weakness and lack of strength/energy was awful. I would wake up each morning feeling like I had just climbed a mountain and every muslce was drained.
I do not like this at all.