I agree with so many of the posts on here. I have a blue badge, I walk with sticks, or on a bad day, my walker…even that is no good for a bad day. I have a blue badge and I’ve mostly had the funny looks of 'well, you don’t look I’ll to me ’ from elderly people. I thought you got older and wiser? Not those individuals obviously. I’m seriously thinking of a car sticker ‘I am ill’ lol. I’ve also had that attitude from my MIL who thinks I’m obviously ‘putting it on’…it really doesn’t help. But, as I see it, they don’t see you at your worst…and those that have that attitude don’t matter in your life.xxx
I agree with so many of the posts on here. I have a blue badge, I walk with sticks, or on a bad day, my walker…even that is no good for a bad day. I have a blue badge and I’ve mostly had the funny looks of 'well, you don’t look I’ll to me ’ from elderly people. I thought you got older and wiser? Not those individuals obviously. I’m seriously thinking of a car sticker ‘I am ill’ lol. I’ve also had that attitude from my MIL who thinks I’m obviously ‘putting it on’…it really doesn’t help. But, as I see it, they don’t see you at your worst…and those that have that attitude don’t matter in your life.xxx
I agree with so many of the posts on here. I have a blue badge, I walk with sticks, or on a bad day, my walker…even that is no good for a bad day. I have a blue badge and I’ve mostly had the funny looks of 'well, you don’t look I’ll to me ’ from elderly people. I thought you got older and wiser? Not those individuals obviously. I’m seriously thinking of a car sticker ‘I am ill’ lol. I’ve also had that attitude from my MIL who thinks I’m obviously ‘putting it on’…it really doesn’t help. But, as I see it, they don’t see you at your worst…and those that have that attitude don’t matter in your life.xxx
agree with all the posts I have just read, but equally terrified… The Ms has been with me since the mid 80thies, have brougt up my 2 sons who re both in their 20 ths now, have kept my job as Senior Lecturer at Uni, commuted on regular basis… and nobody knew about it. A bit obsessed with my swimming, 20 lenths whenever poss and obsessed with my food, fruit +veg…- still, my Ms was largely invisible, quite easy too hide. But things have changed recently: balance: gone, speech: muddled, short-term memory, gone. And then the Neuritis came along, and has affected my vision - TERRIBLE! the most scary thing in my life!
So true - particularly the bit about people floundering because they don’t have the label(s) they need to file us away neatly!
Alison
i still remember vividly the moment when a (so called) friend said that she wished she had ms!
i shocked myself with the way i answered her - low volume but menacing “what a stupid thing to say!”
doesnt sound much but it waas the menacing tone that shocked us both.
well hey, she’s another person gone from my life!
carole x
A “friend” of mine declared on Facebook that as she had twisted her knee and couldn’t work for a couple of weeks she was looking forward to a few weeks easy life on sick pay like the disabled scroungers…We are no longer friends.
Seeing the things that are being said it is like a carbon copy of my life. I remember I colleague asked what the main symptoms of my condition was, I said there was quite a few but I found my failing mobility and fatigue the worst she said but I get tired too! Another said you r not disabled you r only disabled if you lose a limb or something. The thing is they r nice people just ignorant! I don’t speak about my condition to them anymore. You do have to grow a thick skin though but that can be hard.