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Ms and celiac

Hi all, I’ll start by apologising I really only use this site as a ref when I’m unwell. Since I was diagnosed (18 months ago) I’ve noticed massive changes in fatigue,achenes, headaches vomiting after eating etc all Drs seem to tell me this has nothing to do with my ms, so what is it then? We’ll after looking through the internet I discovered there is a huge link between ms and celiac and I have definite intolerance to gluten! Although my Dr was annoyed at my self diagnosis she humoured me and was happy to tell me I’m not celiac, but diet elimination told me I had a intolerance. Since I’ve started a gluten free diet the difference is nothing short of amazing, why if the links are so clear why are you not told of this at diagnosis? I was a chef and even I never realised the severity of symptoms if you’ve got a intolerance, although Drs are very protective over Ms and are quick to tell what isn’t Ms, but less so to tell you what is? The only thing that remains true is that it’s your Ms and eventually you’ll know what’s right. Good luck to all and remember what fits for one May not fit for all, but keeping an open mind is sometimes key to helping relieve symptoms.

Yes, you are correct - coeliac disease is also a auto-immune disease - so is crohns - all connected to a vitamin d3 deficiency. l try - and not always stick to it - but l do try not to eat any grains. So no bread/cereal/biscuits. And if l stick to it l am so much better. l find carbs just add to my fatigue. Apparently, the stomach uses a lot of energy to digest carbs. l have tried to follow the Barry Groves eating plan [google him] l have his books - he advocates following the hunter/gatherer way of eating. lt works for so many illnesses. MS being just one of them. Recently, Terry Wahls has come up with her diet - which is the same as Barry Groves. Did try - some years ago the ‘food combining’ diet - where you do not eat carbs with protein at the same meal. l did well on that - lost weight and felt more energised.

l had lots of tests done to see why my bowels were so over- active. Had a barium meal x-ray and the camera up me bot - and the conclusion was that l had rapid transit. No physical reason for it. Had biopsies taken of the bowel - and all clear. They now believe me when l say that what ever l eat goes straight through me without touching the sides. The radiologist and l had a good laugh about it - comparing it to Top Gear - and how fast a lap in a reasonable priced car. She said l would definitely be top of the leader board. From drinking the large jug of barium - it took 7mins to clear through my stomach. She said that she has had patients who take 7hrs.

l use gram flour - chickpea flour - for fritters/bharjis - cornflour for thickening gravy/sauces and making batter. Eat lots of protein/veg/salad. Try not to eat much potato/tomato as they set me off. Both members of the deadly nightshade family oddly enough. lts not that l don’t like them - its just the problems they give me.

lts worth googling vitamin d3 ms coeliac - l am sure you will get more info. lts not a case of being ‘allergic’ - its as you say an intolerance. There is not a lot of help - in the medical profession - for all the symptoms ms cause - so l do believe you need to do your research and find out for yourself.

Yes, you are correct - coeliac disease is also a auto-immune disease - so is crohns - all connected to a vitamin d3 deficiency. l try - and not always stick to it - but l do try not to eat any grains. So no bread/cereal/biscuits. And if l stick to it l am so much better. l find carbs just add to my fatigue. Apparently, the stomach uses a lot of energy to digest carbs. l have tried to follow the Barry Groves eating plan [google him] l have his books - he advocates following the hunter/gatherer way of eating. lt works for so many illnesses. MS being just one of them. Recently, Terry Wahls has come up with her diet - which is the same as Barry Groves. Did try - some years ago the ‘food combining’ diet - where you do not eat carbs with protein at the same meal. l did well on that - lost weight and felt more energised.

l had lots of tests done to see why my bowels were so over- active. Had a barium meal x-ray and the camera up me bot - and the conclusion was that l had rapid transit. No physical reason for it. Had biopsies taken of the bowel - and all clear. They now believe me when l say that what ever l eat goes straight through me without touching the sides. The radiologist and l had a good laugh about it - comparing it to Top Gear - and how fast a lap in a reasonable priced car. She said l would definitely be top of the leader board. From drinking the large jug of barium - it took 7mins to clear through my stomach. She said that she has had patients who take 7hrs.

l use gram flour - chickpea flour - for fritters/bharjis - cornflour for thickening gravy/sauces and making batter. Eat lots of protein/veg/salad. Try not to eat much potato/tomato as they set me off. Both members of the deadly nightshade family oddly enough. lts not that l don’t like them - its just the problems they give me.

lts worth googling vitamin d3 ms coeliac - l am sure you will get more info. lts not a case of being ‘allergic’ - its as you say an intolerance. There is not a lot of help - in the medical profession - for all the symptoms ms cause - so l do believe you need to do your research and find out for yourself.

Yes! My GP and neuro told me not to change my diet when I got my MS diagnosis, but I read up online and gave up gluten among other things and I feel so much better! Listen to your body.

I’ve been following the 5:2 diet for the past two weeks and have already noticed a vast difference in my fatigue on my 500 calorie days. I have no carbs (bread or potatoes) on these days and virtually no sugar either - usually mostly fruit and veg and some protein. I realise this is unsustainable (not to mention unhealthy) to eat this amount regularly so i am experimenting with cutting out bread to see if this helps. Not being bloated and uncomfortable by mid day was a wonderful feeling - I hope I am not intolerant to wheat as I absolutely adore fresh bread (I bake my own). Not sure if any of this is just pure coincidence but I’m going to keep trying and see what happens - hopefully lose some weight as well!

Hi All !! I never associated my having M.S (diagnosis in 2005) with digestive problems until I read these posts!! Was kind of a relief to discover that I’m not alone in thinking that there’s a definite connection !! Have been suffering for the last two years or so with terrible symptoms , extreme bloating, acid reflux, nausea, diarrhoea, constipation etc. But it’s been horrendous for the last couple of months, Been backwards and forwards to the docs , had blood tests for helicobactor, celiac etc. All negative !! ( now waiting for gastrascopy) But in the mean time I decided to try a change of diet, cut out bread, potatoes, pasta, and found that I felt so much better !! Fell off the wagon for a bit a couple of weeks ago, and surprise , surprise !!! All the symptoms returned with a vengeance !! So… Even though the test for celiac was negative, I decided to try cutting out the gluten, been making bread, pastry, cakes. Etc, with gluten free flour, what a difference !!! Symptoms seem to have abated, even made spag Bol with gluten free pasta, and couldn’t really tell the difference, even tested it on my family and they didn’t even notice!!! The doctors aren’t always right, the proof of the pudding is in the eating, as they say !!!