Forum

gluten free

Read about a study where quite a number of people with MS are also coeliac on the basis that theyre both auto immune diseases and if your body has the ability to attack one part of you it can attack another. Even the people in the study who were not coeliac had a high intolerance to gluten, and so they were put onn gluten free diets. All of them felt better. Has anyone with MS actually gone gluten free and if so how was it? |I have started this but has only been 3 days. They also recommend vitamin D and fish oil supplemtns, I also read that when people did feel better they had more energy and their brain fog cleared quite a lot. cheers people :slight_smile:

I went gluten-free in 06/07 and whilst I love bread, dream about great,crusty, wonderful bread, I know that gluten is not my friend.

I was in so much pain and felt really ill. I was tired, bloated and had constant indigestion and reflux.

I tried an experiment in 07 - I ate amazing bread for 5 days. I had 2 days in bed after that as my feet hurt so much (neuralgia) that I couldn’t bear to walk.

I recently started Intermittent Fasting. This has gone really well so far. I made a mistake though, thinking that the claims made for IF, would lower my inflammation levels and so on non-fasting days I ate bread.

This wasn’t clever - we’d discovered a baker (panaderia) whose bread is so good that it’s sold out within minutes in our local supermarket. I ate the bread. I loved it. I had tomatoes squished on toasted bread…

I had to take Lyrica yesterday as the pain surged again. The symptoms of my last relapse came back - neuralgic pain in my hands, feet and face and no leg strength, despite my taking Fampyra.

It’s a sad realisation that cereals and I just don’t get on. I can’t eat oats either and went into anaphylactic shock when I was a baby. My mum had given me porridge for the first time.

My advice (from bitter experience) is give gluten-free a trial for a week and try to get to the end of a month. If you feel better and have less pain, then stick with it. There are many great alternatives to wheat/gluten in the shops.

I think my neuralgia will stop by tomorrow. I still feel as though I’d been whipped with nettles, but less so today. I find bread to be very addictive. Ah well. I would make a joke about going cold turkey, but I’d just fantasise about sandwiches.

Hi I gave up wheat about 10yrs ago and I feel that it has a huge benefit, although with this ever changing illness it can be difficult to tell! From a general digestive point of view, I felt healthier almost straight away even though I hadn’t problems with my digestive system before. As far as the MS was concerned it took about a couple of weeks to notice the difference but even than I thought I might just be having a good patch. After a few months I found myself in the position of only having bread on offer and thought I might as well give it a try. It took me a couple of months to get back to feeling as well as I had been (I’d only eaten one bread roll!) Over the next few years I test it twice more, just to make sure that I wasn’t missing out on toast for nothing. Each time I ate bread I found that all my MS symptoms ( fatigue, pain, balance, vision, sensory stuff etc etc) got worse. Once I had convinced myself that this was not just coincidence I stuck to a wheat free diet but I have never made the effort to be gluten free and have not bee as strict as a someone with coelac disease has to be (I nephew has it) but as I’ve been getting worse lately I think that, maybe, now it’s time to be a bit more careful! I have been a vegan since I was 13yrs old ( I’m now 55) so I don’t know if that’s made a difference or not. I’ve probably had MS since I was a teenager and have only just started to feel REALLY disabled rather than restricted, inconvenienced and annoyed by it i.e having to use my wheelchair even for short shopping trips etc, but who knows if being vegan made any difference? I have thought about cutting out all grains and pulses to see if that made any difference but perhaps living on nuts and veg might be a step to far!!!

The selection now of gluten-free breads/rolls/biscuits/pasta has really improved - so has the gluten-free bread mixes that you can buy.

Almond milk is delicious - although l find it not to my taste added to coffee. More calcium and goodness in almond milk then cows -and far less calories.

l know l am much better not eating grains/pulses - but its the will-power sticking to it thats my problem. l really must make more of an effort.

Gram flour - which is made from chickpeas - is great for making courgette fritters or vegetable bhajis.

l do take a high dose vit d3 and magnesium plus omega 3 and B12.

Hi, I stopped having gluten 2 years and Ifeel so much better,you can always make your own bread with non gluten flour which tastes great and there are plenty of non gluten products.

Sue