Can a GP send you for an MRI scan, or does it have to be a neurologist or consultant?
I am in limbo with a clinically isolated syndrome (optic neuritis), which I have had since March of this year. However, I have loads of MS symptoms, which seem to be getting worse, and for the past 4 weeks, I have been experiencing face pain, which is a new symptom, which I understood to be a relapse. However, when I saw the MS nurse last week, she said that she wasn’t sure whether it was a relapse and she would ask my neurologist at a meeting yesterday. All I have had back from the MS Nurse is an email saying the neuro is checking my blood tests, as I had asked whether I had been checked for Hughes Syndrome (my brother got Deep Vein Thrombosis a couple of years ago). My blood tests were done on 30th June and the neuro had written to my old GP back in July saying they were all clear. I only asked this as a “by the way”, as I have no idea what I have been tested for! :evil:
I am so frustrated (as I know many of you are), as my MRI showed “several focal areas of abnormal signal within subcortical white matter of the frontal and parietal lobes” and “Two white matter lesions within periventricular white matter adjacent to trigone and occipital horns with volume loss within the right parietal lesion”, there is also “a cystic area adjacent to the fourth ventricle within the left cerebellar hemisphere”, which they say has no significance. Anyone know what significance a cyst might have in this area of the brain?
There is obviously something going on and I asked whether I could have another MRI scan with contrast to see whether there is further inflammation, and to have a comparison. I have been told by the neuro that she doesn’t do MRI scans as a matter of course, but surely I would have thought if the face pain is a new symptom it would be beneficial to have another one done – what do you think? Am I just being unreasonable and being difficult? :mrgreen:
I have just registered with a new GP, who I am yet to see, and wondered whether it was something he could send me for. I also want a second opinion – can he refer me to an MS specialist too? My current Neuro is not an MS specialist.
Sorry - I have gone on a bit ! :shock: