Grrrr!
Brilliant!
I have investigated the firework option and it is possible, but quite expensive.
M
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I had to laugh at it, too, although I was shocked speechless for a bit. Mum admits that she doesn’t understand MS, but she’s trying hard, and she’s really been my rock in recent months. She’s not doing badly for a recent widow pushing 80!
reminds me of a former work colleague who told us her prematurely born grandson had been born with no lungs but ‘was doing o.k.’
I’m quite lucky having never had any comments about being in my wheelchair or scooter, it might be that with my shaved head & long biker beard I look too scary.
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A senior registration said “it’s a really good time to be diagnosed with ms” I knew where he was coming from I.e meds available- but really!
Should have read registrar
‘It’s all in your head’ I was told many years ago by a close family member in my native country who never visits…, and I am sure he was not referring to MS…
I have a useless MS Nurse too. She calls herself a ‘specialist’ though. When I went to see her she asked me what I wanted her to do. I thought she helps people with MS. I haven’t seen her since either.
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None of my family believe I have MS, they just think I am lazy. I have been told by a Neurologist that there was nothing wrong with me and to go back and see him if I went blind, I couldn’t move my legs or I couldn’t move my arms. He then discharged me back to my GP. That was before I saw a specialist MS Neurologist who diagnosed me. I think because no one can physically see MS they don’t believe it exists. Or it seems most people think that it is like a cold that you will recover from. It makes me really mad.
I am fed up with trying to explain to people about MS. If you are having a better day lots of people think you are faking it.
Yesterday I was told. You caused yourself to have MS. it is all because you either have mental issues you haven’t sorted. Or. You have been nasty to people. You can fix yourself by being nice to people.
Honestly. I am not making it up. What can you say to that???
Anne xx
I am fortunate that I have never really had offensive or hurtful things said to me by friends or strangers.
But I can’t tell you how much it hurt when my wife spoke to my about my illness after she “found God”.
She said that everything I was going through was part of his plan and there was a reason why he had chosen to make me ill and not to let me get better. She said she doesn’t know why he would do that , but maybe it was because I didn’t “believe”. It was a pretty upsetting conversation all round but I think the worst part is knowing that she has chosen to start sharing her life and her heart with a God she believes is deliberately letting me suffer. That she’s happy praising and worshipping a God like that, and that he’s become more important to her than I am.
(Sorry if this offends anyone.)
I suggest you say nothing at all, even apathy is a waste of effort on these idiots (in my opinion)
mick
I am not offended just saddened that rational people think like this. I wish you both all the best. Mick
Shortly after my diagnosis I was talking to a co worker who was asking question and I was explaining what I could. Later that day When it was just me and my Boss in the room he told me to stop talking like that because it was depressing and p***** him off. Just one off many things he did/said to offend or upset me both pre and post diagnosis. Thankfully I no longer work for him and am happy to know lots of staff left and a few are now actually his Boss. Apparently he really doesn’t like 
Hi anon, well you can tell your wife from me, that I’ve been a catholic all my life and although I don’t go to church now and have and still do believe in God, still pray to him, not some new comer to it like your wife and I still got MS, the way I see it is, he doesn’t do this to us, we’re just unlucky, I’m sorry your wife makes you feel this way, I did want to send a pvt message, but couldn’t, take care and chin up, you aren’t on your own.
I was once asked, do I support Tottenham Hotspur?..
(I’ll get my coat x)
that’s harsh
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…for God’s sake!..