Not sure where I belong!!
My neuro basically told me he’s ruled everything else out and was left with PPMS and HSP. But all tests (MRI/LP/VEP) were negative for MS, so although he said he’s not ruling it out 100%, it’s unlikely…
He tested me for some enzyme to see if I have the hereditary part of HSP, but today he’s told me that was negative so unlikely to be HSP…
I just want to know where I belong!!
He did tell me I have Spastic Paraplegia, and we may never find the cause, along with other conditions which he can’t give me answers for… (well he’s told me I do have ME, (dx 2008) as well as Chronic migraine and ‘idiopathic’ spastic paraplegia… as well as the other things he can’t answer) But I still feel fobbed off!!
I know my story is similar to others… especially Poll… but unlike Poll’s wait of 14 years, I’ve only had 5.
Sorry I just needed to vent…
Thanks for listening
xx