I’m relatively new here and would appreciate anyone’s advice about mobility aids – especially wheelchairs. I’m 34 and was diagnosed with MS in April this year. I also have nerve damage (transverse myelitis) at the bottom of my spine. I have sensory loss, muscle weakness, and frequent bouts of non-control to the left leg and saddle area. I also have foot drop on the left.
Currently, I can manage to walk about three steps on my own. With a stick (held on my left/weaker side for counter balance) I can manage about 10-15ft before needing to rest because my symptoms or fatigue get worse. Sometimes this rest can be for as little as ten seconds; other times I’ve known it to be more like ten minutes. That’s fine for getting about the house, room to room, slowly – but for going outside it’s not so good. It takes a great deal of work to socialise and I’m starting to get anxious whenever someone asks me to meet them for lunch/a cuppa because I worry about mobility and fatigue. Does anyone else get this?
Members of my medical team have advised me about getting a wheelchair but I don’t know if wheelchair services will be able to help given my “ability” to walk a little. My husband and I tested a mobility scooter this last weekend and (while entertaining) I don’t think I could cope (emotionally/mentally) with having one so soon. I’m wondering if a wheelchair – especially one that “looked good” – would be better?
I’d welcome any help or thoughts here – and if anyone can recommend (or not recommend) a specific wheelchair or anything else, please do so! Thanks